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LivingWithTrisomy13.org

 

Deadline is quickly approaching - 2008 Living with Trisomy 13 SURVEY. Investigating the common T13 experience and helping to update the current literature written on the children diagnosed with Patau Syndrome. If you’d like to participate contact us ASAP. info@livingwithtrisomy13.org

Trisomy 13 Syndrome - Photos, Videos & Updates
of Children & Adults Living with Trisomy 13

Patau's Syndrome Photos
"Miracles in Progress"

LWT13 General Message Board
Members include Families in all stages
of the trisomy journey. (Prenatal, Living and Grief)
Request Message Board Access: info@livingwithtrisomy13.org

We hope these images of Trisomy 13 – Patau Syndrome children inspire you. From cleft lips to contagious smiles, this Trisomy 13 group of families are here to offer you support as you begin your trisomy journey.

Our Photo Album now includes 74 children & adults living with Trisomy 13!!! Many are long term survivors!! Click here to browse all 74 Trisomy 13 Photo Albums

219 members on our Living with Trisomy 13  message board. These families offer immediate phone support

Speak Spanish

Military Family

Partial Trisomy 13

JayLa Simmons Godfrey
Baltimore, MD
Born: Aug 25, 2007
Click here for details

Do you have a child living with Trisomy 13?
Here you can celebrate their life and share with others who have lived with a diagnosis of Trisomy 13 - Patau Syndrome.
 We would like to add your child to our living photo album.

Click here to send their information to info@LivingWithTrisomy13.org

Zafira Kamilah Nur
Jakarta, Indonesia
Born: Feb 1st, 2008
Click here for details


Full Robertsonian Translocation Trisomy 13

Zoey Ella-Lee Eoff
San Jose, CA
Born: March 25, 2008
Click here for details


Trisomy 13 Mosaic

Kaitlyn Dakota Owens
Murrieta, CA
Born: Sept 29, 2001
Click here for details


Partial Trisomy 13

Grace Anne Long
Ermine, KY
Born: Feb. 7, 2008
Click here for details


Trisomy 13 Partial

Indie Marie Smith
Layton, Utah
Born: March 19, 2007
Click here for details


Full Trisomy 13


Gabriel Alonzo Lugo
Miami, FL
Born: May 18, 2005
Click here for details

>
Partial Trisomy 13

Rayana Nicole Johns
Waldorf, MD
Born: Jan 6, 2006
Click here for details


Partial Trisomy 13

Ásrún Vala Kristjánsdóttir
Húsavík, Iceland
Born: April 14th 2003
Click here for details


Full Trisomy 13

Casey Porter
Baltimore, OH
Born: Nov 1991
(16 years old!)
Click here for details


Trisomy 13 Mosaic

Becca Trewin
Kitchener ON Canada
Born: Jan 1, 1975
(32 yrs old!)
Click here for details


Full Trisomy 13

Joey Lane Huddleston Reite
Georgetown, CA
Born: March 6, 2007
Click here for details


Partial Trisomy 13

Max Andrew Kroeker
Honolulu, (HI)
Born: April 14, 2007
Click here for details


Full Trisomy 13

Tindra
Mustasaari, Finland
Born: June 24, 2007
Click here for details

Trisomy Mosaic
Joey Samuel Lawrence
Tacoma, WA
Born Jan. 17, 2007
Click here for details


Full Trisomy 13

Hicham Chaouki
Assen, Netherlands
Born:  Jan 2, 2002
Click here for details


Full Trisomy 13

Ke’Shun Amir Taylor
Atlanta, GA
Born: Jan 22, 2006
Click here for details


Full Trisomy 13

Tenecia Hargrave
Concord, NC
Born: March 06, 1982
Click here for details


Full Trisomy 13 and Dandy-Walker Malformation

Grace Noel Lundt
Omaha, NE
Due: April 12, 2007
Click here for details


Full Trisomy 13

Veronica Lynn Cummings
Born: Dec 17, 2006
Midlothian, VA
Click here for details


Trisomy 13 Mosaic

Kimberly Adrienne Miller
19 Years Old!
Born: Oct 14 1987
Naples, FL
Click here for details


Full Trisomy 13

Eisha Vang
Born: Aug 26, 2005
Click here for details
Trisomy 13
partial trisomy 13-partial monosomy 14
Alissa Corazzini
Born: Sept 3, 1992
Torrance, CA
Click here for details

Full Trisomy 13
Arianna Snell
Born: June 19, 2006
West Jordan, UT
Click here for details

Full Trisomy 13
Kristopher Akins
Born: Dec 13, 2005
Mesquite, TX
Click here for details

Full Trisomy 13
Evan Cotter
Born: May 11, 2006
Speonk, NY
Click here for details
Trisomy 13 Stephen born July 1, 2006 Stephen Fox
Born: July 1, 2006
Santa Fe Springs, CA
Click here for details
Trisomy 13
Full Trisomy 13
Kaci Hyatt
Born: July 7, 2006
Chicago, IL
Click here for details

Full Trisomy 13
Hazel Dunn
Born: Jan 19, 2005
Fife, Scotland
Click here for details


Trisomy 13 Mosaic

Amber Lyn Courey
Born: June 17, 1997
Sioux City, IA
Click here for details

Partial/ Translocation
Caroline "Cara" Juliet Dance
Born: Sept 9, 2005
Ottawa, Ontario, Canada
Click here for details


Full Trisomy 13

Mollie Faith Havlik
Born: Dec 22, 2005
Ann Arbor, MI
Click here for details

Partial Trisomy 13
Koray Kutlay Kebir
Born: Jan 1, 2003
Elazig, TURKEY
Click here for details

Full Trisomy 13

Bryson Elliot Allen Nault
Born: June 9, 2006
San Antonio, TX
Click here for details
 

Full Trisomy 13

Nathan Shepherd
Born: March 15, 2006
Alma, AR
Click here for details
 

Full Trisomy 13
Melanie Nicole Gutierrez Towers
Born: Sept 22, 2002
Mexicali, Baja Mexico
Click here for details

Partial Trisomy of the 13th Chromosome
Lynne King
Born: June 3, 1959
48 yrs old!
We believe Lynne is the Oldest Partial Trisomy 13 at present.
Monroe, WA
Click here for details
Mosaic Trisomy 13
Trisomy 13 Mosaic
Madalin Grace LaChoppa
Born: Jan 30, 1997
McKeesport, PA
Click here for details
Trisomy 13 photo
Trisomy 13
Kaitlyn Garcia
Born: June 7, 2004
Murrieta, CA
Click here for details

Full Trisomy 13

John-Robert Martin
Born: December 22, 2004
Summerville, PA
Click here for more details

2/3rds Partial Trisomy 13
Callum Morgan Tarling
Born October 2, 2003
Victoria, British Columbia, Canada
Click here for details

Full Trisomy 13
Nicholas "Dalton" Martini
Born Dec 30, 2003
Fort Worth, TX
Click here for details
Taylor - Full Trisomy 13
Full Trisomy 13
Taylor Passmore 
Born: May 29, 1993
14 Years Old!
Prosser, WA
Click here for details

Full Trisomy 13
Angela Frances Ricker
Born: Oct 8, 2004
Orford, NH
Click here for details

T13 Mosaic

Mitchell Cragg
Born: Dec 16, 2004
Moorhead,MN
Click here for details
 

Trisomy 13 picture
Partial Trisomy 13

Autumn Troy
Born: Aug 31, 1987
20 yrs old!
(with partial t-11 or 17 Mosaic)
Houston, TX
Click here for Details
trisomy 13 photo
T-13 Translocation
Rebecca Carter
Born: March 25, 2002
West Point, MS
Click here for details
 

T-13 Translocation
Kayla Carter
Born: Sept 7, 1991 - 15 years old!
West Point, MS
Click here for details
Full Trisomy 13 child picture
Full Trisomy 13
Karla Coutinho de Azevedo
Born: Dec 11. 1997
Blumenau, Santa Catarina, Brazil
Click here for details
 

Trisomy 13 Mosaic
Michael Bailey
Born: Aug 6, 2001
Gladewater, TX
Click here for details
Translocation 13q/15q
Translocation 13q/15q
Rebecca Kay Parkman
Born: Aug 3, 1986
21 yrs old!
Atlanta, GA
Click here for details

Partial Trisomy 13
Eleora Toomey
Album includes videos!Born: Aug 27, 2002
Wake Forest, NC
Click here for details

Full Trisomy 13
Alejandro
Born: Feb 3, 2001
Las Palmas, Canary Islands
Click here for details

Full Trisomy 13
Sofia Poulin
Born: Jan 23, 2004
San Antonio, TX
Click here for details

Translocation Trisomy 13
Michael Mason
Born: Sept 15, 1984 - 22 years old!
Fort Myers, FL
Click here for details

Full Trisomy 13
Colton Denton
Born: March 27, 2005
Colorado Springs, CO
Click here for details

Full Trisomy 13
Farida Nour
Album includes videos!Born: Jan 1, 2005
Helwan, Cairo - EGYPT
Click here for Details

Trisomy 13 Mosaic
Andrew Zarifeh 22 Years Old!
Born: Jan 4, 1984
Orpington, Kent, ENGLAND
Click here for details

Full Trisomy 13
Itaisa GonzalesAlbum includes videos!
Born: July 29, 2000
Tenerife, Canary Islands
Click here for details

Trisomy 13 Mosaic
Donnalee Ashlyn Rose D'Ambrosi
Born: Jan 5, 2004
Nassau, NY
Click here for details

Trisomy 13 Mosaic
Stephen Thomas Comparetto
Born: Oct 5, 2004
Berryville, VA
Click here for details

Trisomy 13 Mosaic
Hannah Clare Ward
Born: Sept 29, 2000
New Albany, OH
Click here for details
Partial Trisomy 13 Photo
Trisomy 13 Partial
Ferol Jeanne Grode
Born: Oct 13, 1995
White Bear Lake, MN
Click here for details
Full Trisomy 13 Photo
Full Trisomy 13
Zion Alexander Lint
Born: May 2, 2001
Richlands, VA
Click here for details
Living Full Trisomy 13 Child
Full Trisomy 13

Album includes videos!Natalia
Born: Aug 25, 2000
Southern CA
Click here for details

Trisomy 13 Mosaic
Video GalleryLogan Arbogast
Born: Dec 4, 2001
Newport, PA
Click here for details
Full Trisomy 13 Photo
Full Trisomy 13
Phoebe Heisler Konik
Album includes videos!Born: Aug 14, 2002
Bloomsbury, NJ
Click here for details
Full Trisomy 13 Photo
Full Trisomy 13
Aaliyah Natalie Alisca
Born: July 18, 2003
Washingtonville, NY
Click here for details

Trisomy 13 Living Photo
Full Trisomy 13

Jacob Anthony Haynes
Born: May 3, 2000
Milton Keynes, England
Click here for details

Full Trisomy 13
Album includes videos!Devon Stewart Victor
Born: June 15, 1995
DeLand, FL
Click here for details

Trisomy 13 Mosaic
Samuel Kennedy Jackson
Born: Nov 28, 1998
Milan, TN
Click here for details
Full Trisomy 13 Photo
Full Trisomy 13
Lois Kathleen Sampson
Born: May 4, 2001
Seffner, FL
Click here for details

Full Trisomy 13
Nicholas Alexander Wright
Born: April 6, 1995
Hudson, IL
Click here for details
Full Trisomy 13
Full Trisomy 13
Video GalleryJosiah Alderson
Born: Jan 14, 1998
Costa Mesa, CA
Click here for details
Full Trisomy 13 Photo
Full Trisomy 13
Sofia Holden Peabody Waters
Born: Sept 25, 1998
Costa Mesa, CA
Click here for details

Trisomy 13 Mosaic
Hannah Gabrielle Dexter
Born: Oct 6, 2004
Chiefland, FL
Click here for details
Families Misdiagnosed with Trisomy 13 - Wrong Diagnosis of Genetic Syndrome or Genetic Profile Abnormalities  

Alicia Gartner
Excelsior Springs, MO
Born: Nov 23, 1997
genetic testing came back that she does not have Trisomy 13
Click here for details
 

 

Other Albums

PRENATAL Diagnosis Album for families growing in love as they await the arrival of their child.

Treasured Memories Album for families who embraced life & have loved and lost their precious Trisomy 13 child.

Please visit our "Sister" Trisomy 13 - Patau Syndrome sites

Click here to visit a translation of a German Trisomy 13 photos site

Prenatal Partners Trisomy 13 Stories
 


 

If you are the parent of a child with Trisomy please visit Tracking Rare Incidence Syndromes (TRIS) and find out how adding your information to their database can help increase Trisomy awareness. Click here for more info...

 

 
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Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA  92649

info@LivingWithTrisomy13.org

 

 

Text and graphics © LivingWithTrisomy13.org 2005-2007 All information found on this site was submitted to us directly by the families and used on this site with their permission.
Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 

Looking for ALL families who’ve had a trisomy child of any number. Whether you terminated, miscarriage, had a stillbirth, live birth - living or deceased. Including adoptive and Foster parents. Please fill out the TRIS survey  to help update the medical literature and to improve the quality and availability of medical care. Tracking Rare Incidence Syndromes (TRIS)  Click here to add your information

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