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LivingWithTrisomy13.org

 

Deadline is quickly approaching - 2008 Living with Trisomy 13 SURVEY. Investigating the common T13 experience and helping to update the current literature written on the children diagnosed with Patau Syndrome. If you’d like to participate contact us ASAP. info@livingwithtrisomy13.org

Videos and Presentations

Many of our albums include videos and presentations - below is a quick list to view these presentations
(Don't miss our Homepage presentation)

Album includes videos! VIDEOS & PRESENTATIONS - General/Educational Trisomy 13
A Life Worth Living - Nolan Trisomy 21 (Down Syndrome) A beautiful Trisomy 21 slide show. Samuel Mabeus
Diagnosed with Trisomy 13 Mosaic at 18 weeks gestation, confirmed by amnio. Prognosis: “incompatible with life” Suggested Treatment: abortion. Skin & Blood Tests at birth normal. View to see new diagnosis at 18 months.

FEATURED PRESENTATION:
TRISOMY 13 AWARENESS

"Down the Road of Bittersweet"  a moving video montage by Prenatal Partners for Life
Theraputic Abortion?
99 Balloons - Trisomy 18 (Edward's Syndrome), A touching slideshow and video presentation of Elliot’s life MISS Foundation~ Silent Birth, Stillbirth and MISSing Angels Video
Why would a good God allow these type of things to happen?  Click here to listen to Larry's message about his son Nathan (In Audio)
Click Here for Video Montage: Lessons Learned, by a 9 year old boy describes challenges to his little brothers’ life that taught him many lessons.
Loving Zeke, he lived 35 minutes and died in my arms. Loving Zeke means loving him even if he's not perfect. Life Is Sacred (A Short Video) (Windows Media File) A poignant reminder of the inestimable worth of EVERY life..
Annalise’s Legacy: Holoprosencephaly & Carrying to Term
A family with love and courage carried Annalise to term and her short life continues to touch many lives, long after she went to be with the Lord.
Perinatal Hospice Care- A “must see” for Prenatal Families with a Poor Prenatal Diagnosis After learning that their unborn babies carried fatal genetic flaws, two families turned to specialized hospice programs for support.
VIDEO MONTAGES created for children Living with Trisomy13

Madalin Grace LaChoppa

FEATURED PRESENTATION: Madalin Grace LaChoppa

Caroline "Cara" Juliet Dance
Nathan Shepherd 
Koray Kutlay Kebir
Bryson Elliot Allen Nault
John-Robert Martin
Devon Stewart Victor
Click here to view all Children Living with Trisomy 13
VIDEO MONTAGES created for Treasured Trisomy 13 Memory Albums
Maya Gindele Tindra

FEATURED PRESENTATION:  Maya Gindele

Corbin Glen Flax Fleur Osté-Blom
Nicholas Wyatt Usher Melina Demers
Ivey Marie Queen Naylah Granger
Gemma Therese Holihen David Michael Whittenton
Amaya Faith Lynch Rhema
Sebastian Gonzalez Kia Lien Emma-Lee
Katherine Elizabeth Verjano James Owen
Lauren Elizabeth Duggan Austin Sean Hampton
Eliza Bernice Delgado Alyssa
Kambry Tolbert Faith Constance Carlson
Armani Hope Bell Annie Mary Farlow
Angeliyah Grace Izzi   


 

Click here to download printable LivingWithTrisomy13.org "awareness cards."

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA  92649

info@LivingWithTrisomy13.org

 

 

Text and graphics © LivingWithTrisomy13.org 2005-2007 All information found on this site was submitted to us directly by the families and used on this site with their permission.
Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 

Looking for ALL families who’ve had a trisomy child of any number. Whether you terminated, miscarriage, had a stillbirth, live birth - living or deceased. Including adoptive and Foster parents. Please fill out the TRIS survey  to help update the medical literature and to improve the quality and availability of medical care. Tracking Rare Incidence Syndromes (TRIS)  Click here to add your information

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