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LivingWithTrisomy13.org

Ironman for Kids - The Living with Trisomy 13 Community thanks Michael Hennessey for helping to raise awareness for Trisomy 13 and other related disorders. See Video & Details>

Trisomy 13 Support, Information, Resources,  & Links

For PRENATAL SUPPORT CLICK HERE

TRISOMY SUPPORT General Support & Information about Trisomy 13

Immediate Support  Please click here.

Other Trisomy Photo Sites - Families sharing their stories & pictures

Photographers who provide complimentary services

Other Helpful Resources for Special Needs Children

Finding Doctors & Midwives

 

Other Trisomy Photo Sites - Families sharing their stories, pictures, and personal journey's with Trisomy children.

Living with Trisomy - From Families to Families - Families, Sharing - Growing in Love, while Living with Trisomy
All variations for Trisomy 1, Trisomy 2, Trisomy 3, Trisomy 4, Trisomy 5, Trisomy 6, Trisomy 7, Trisomy 8, Trisomy 9, Trisomy 10, Trisomy 11,  Trisomy 12, Trisomy 13, Trisomy 14, Trisomy 15, Trisomy 16, Trisomy 17,
Trisomy 18, Trisomy 19 (still looking for a contact link), Trisomy 20, Trisomy 21, Trisomy 22

The Trisomy Net Ring was created for those who wish to share their web sites about Trisomy children and/or their families or have pages with information about this disorder and/or related problems.

go to MSNTrisomy 13 support - MSN Group Families that have been through the diagnosis and crisis of Trisomy 13.  We have all had the life experience to help with any questions or any support you may need.

Other PATAU SYNDROME (TRISOMY 13) WEB PAGES

Click here to visit a translation of a German Trisomy 13 photos site

 

 

 


 

Click here to download printable LivingWithTrisomy13.org "awareness cards."

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA  92649

info@LivingWithTrisomy13.org

 

 

Text and graphics © LivingWithTrisomy13.org 2005-2007 All information found on this site was submitted to us directly by the families and used on this site with their permission.
Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 

Looking for ALL families who’ve had a trisomy child of any number. Whether you terminated, miscarriage, had a stillbirth, live birth - living or deceased. Including adoptive and Foster parents. Please fill out the TRIS survey  to help update the medical literature and to improve the quality and availability of medical care. Tracking Rare Incidence Syndromes (TRIS)  Click here to add your information

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