The Angel with the Golden Glow: A Family's Journey Through Loss and Healing
A book for children, yes, but also for special children, and for big adults who
have children who are different. The Angel with the Golden Glow is chosen by God
to go to Earth and be born to parents and stay only for a short time. "You will
be born in this special earthly body. It will not work in the same way that most
do."
Jennifer, mom to Caterina
Fisher Price Roll-a-Rounds Swirlin Surprise Gumballs
The Roll-a-Rounds Swirlin' Surpise Gumballs features a recognizable gumball
machine format for baby to 'dispense' the balls. Baby loads the 4 balls in the
upper bowl and with each press of the lever, a ball will swirl down the spiral
while lights and music.
Recommended by Kristi Poulin, mom to Sofia
Mommy, Please Don't Cry: There Are No Tears in Heaven
by:
Linda Deymaz
Mommy, Please Don't Cry is a book of love and comfort for mothers who have
experienced the deep sorrow of losing a child. Serene illustrations frame gentle
words that describe heaven from a child's perspective. With room for the
reader's personal reflections at the end of the book, every page is a poignant
gift of hope and healing. Recommended by:
Jenny Heagy, mom to Alex Heagy,
and Micayla Carlson, mom to Faith
Fisher-Price Rock, Roll 'N Ride Trike
A sturdy Trike with three fun ways to ride! Lock the base in place for
ride-on, rocking fun. As your child grows, the base converts to an extra long
push handle so you can comfortably stroll behind while they learn to pedal.
Recommended by: ThereseAnn, mom to Natalia
Always My Twin
by Valerie R. Samuels and Najah Clemmons
Always My Twin , for young children who have experienced the death of their twin
sibling, is a book for any child whose twin died before birth, after birth or as
a young child. The story is based on the author's own experience of losing a
newborn twin daughter in 2002. Recommended by:
Valerie Samuels, mom to Gina
and her twin Julia.
Edushape 4" Sensory Balls, Set of 4
Infants can squeeze, roll, throw or kick these colorful and textured balls.
Their bumpy surface offers a tremendous sensory play value for the young
athletes.Set includes four primary color balls-1 each; yellow, blue, green and
red. Baby products by Edushape will enable babies to: explore, discover,
visualize, and verbalize and so much more. Recommended by: Julie Walsh Kroeker,
mom to Max
Lamaze First Mirror
Lamaze mirror for encouraging head-lifting
Recommended by: Julie Walsh Kroeker,
mom to Max
Tear Soup
by: Pat Schweibert
Tear soup is a wonderfully illustrated children's book for adults written about
how we each individually grieve loss in our lives. Recommended by: Laurie-Beth
Brennan, mom Serena Brianne
The Fall of Freddie the Leaf: A Story of Life for All Ages
by Leo Buscaglia
The Fall of Freddie the Leaf touches children and adults alike, illustrating the
delicate balance between life and death. The Fall of Freddie the Leaf is a warm,
thought-provoking story about how Freddie and his companion leaves change with
the passing seasons and the coming of winter. Recommended by:
Laurie-Beth Brennan, mom
Serena Brianne
LeapFrog Spin and Sing Alphabet Zoo
Little ones learn about animals and their sounds and the letters A to Z with
each spin of the wheel! Music, lights and swirling patterns encourage
exploration. Babies develop motor skills by batting the wheel again and again.
Recommended by: ThereseAnn, mom to Natalia
Vtech - Rhyme & Discover Book
I’m am sure Natalia learned to hum her favorite songs around the time we
purchased this toy musical book.
She could push to play the song as we turned the pages. Great toy. Recommended
by: ThereseAnn, mom to Natalia
Music for CHILDREN
Baby Signing Time! Volume 1 DVD
Starring Rachel de Azevedo Coleman
Baby Signing Time Volume 1 sets your baby's day to music as you learn signs and
songs for everyday events in baby's life - eating, family, pets and more.
Recommended by:
ThereseAnn Siegle, mom to Natalia
Fisher-Price® Roll-a-Rounds™ Drop & Roar™ Dinosaur
Your little learner will be rewarded with music, sound and lights by sending
adorable roll-around creatures down color-coordinated paths.
Recommended by Kristi Poulin, mom to Sofia
Disney Sing Along Songs: Under the Sea
Sing, dance, and play along with your favorite Disney songs! It's fun and easy
as you read the on-screen lyrics and join your favorite characters in their most
memorable musical moments! Dive into these wonderful water tunes with your host
Professor Ludwig von Drake as he introduces a great collection of songs and
scenes from PETER PAN, THE RESCUERS, and many other top films and cartoons!
Recommended by:
ThereseAnn Siegle, mom to Natalia
Lamaze Chime Garden
This one is great for cause and effect with three modes: one note per flower
touch, one phrase of a song per flower touch, one whole song per flower touch.
Music, lights, crinkly leaves and various textured flowers. Many senses are
stimulated and we changed modes as cause and effect awareness increased.
Recommended by: Julie Walsh Kroeker, mom to Max
Sing Along Songs - Disneyland Fun
Sing, dance, and play along with your favorite Disney songs! It's fun and easy
as you read the on-screen lyrics and join your favorite characters in their most
memorable musical moments! Sing along to the happiest songs on earth at the
happiest place on earth -- Disneyland! Your host, Mr. Owl, invites you to
celebrate a musical day with all your favorite Disney friends. Join Mickey and
Minnie for fun and thrills as they hustle and bustle behind the scenes at the
park! Recommended by:
ThereseAnn Siegle, mom to Natalia
Magic Lights and Sound Ball
This ball is still a favorite and got Max scooting yoga-style, then crawling, to
reach it. It has wild disco-style lights, and kid music that stimulate the
senses when it is moved. When the ball stops the song comes to an end and light
stop flashing until it is moved again. Bought it at Walmart for half price.
Recommended by: Julie Walsh Kroeker, mom to Max
Hasbro Playskool Busy Ball Popper
We use this ball game at PT and OT to encourage picking up and placing balls
deliberately (vs throwing or random release). It’s noisy/bright and fun as the
balls fly all over. Our 4 year old calls it the popcorn game and likes to join
in. Recommended by: Julie Walsh Kroeker, mom to Max
LeapFrog Hug & Learn Baby Tad Plush
Cuddle up to this cute companion anytime. Night and day, this adorable amphibian
is a favorite among little ones. Play soothing classical music at naptime or
bedtime. During playtime, play songs and learning games that engage young minds
for hours. Press the moon on Tad's hand to program up to six minutes of
classical music from Mozart, Beethoven and more. Or press the sun on Tad's other
hand to hear six fun songs.
Recommended by: ThereseAnn, mom to Natalia
A special Thank you to Micayla, mom to Faith
Constance Carlson, for helping
to compile this list of support material recommended by our Living with trisomy
13 community of families.
Living with Trisomy 13 Focused on prayerful support and gifts of love
to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA 92649
If We Hold On Together Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.
Used with permission.
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy
13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional
familiar with your specific condition. The personal journeys of any parents on
this site are only their opinions and their own journey with having a Trisomy 13
child. You should consult with your own physician or other medical professional
regarding the opinions or recommendations expressed within these pages as to
your own child's symptoms and medical condition.
This ball is still a favorite and got Max scooting yoga-style, then crawling, to
reach it. It has wild disco-style lights, and kid music that stimulate the
senses when it is moved. When the ball stops the song comes to an end and light
stop flashing until it is moved again. Bought it at Walmart for half price.
Recommended by: Julie Walsh Kroeker, mom to 
Translation
