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  Embracing Life - One Moment at a TimeTM

LivingWithTrisomy13.org

 

Deadline is quickly approaching - 2008 Living with Trisomy 13 SURVEY. Investigating the common T13 experience and helping to update the current literature written on the children diagnosed with Patau Syndrome. If you’d like to participate contact us ASAP. info@livingwithtrisomy13.org

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Trisomy 13 Syndrome Photos & Updates
Prenatal Diagnosis Album

 

 

Patau's Syndrome Prenatal Diagnosis
"Miracles in Progress"

 

Click here for our Prenatal Resources for Trisomy 13 ~ be sure to view the DON'T MISS section.

LWT13 General Message Board
Members include Families in all stages of the trisomy journey. (Prenatal, Living and Grief)
Request Message Board Access: info@livingwithtrisomy13

Has your child been diagnosed prenatally with Trisomy 13 – Patau Syndrome?

We bless and honor these families who are continuing forward with their pregnancy. With faith, hope and love, they are embracing each precious moment they have with their child. Please keep all our trisomy children and families in your daily prayers.

Are you pregnant with a Trisomy 13 diagnosis and choosing to carry to term?
We would love to add your child to our Album.
Click here to send your information to info@LivingWithTrisomy13.org

Jake Marquez
Due: June 11th, 2008
Lawton, OK
Click here for details

Military Family

Emma Leyce Gavin
Due: June 14, 2008
Lincoln, Nebraska
Click here for details

 

"Those who don't allow themselves to bring these kids into the world
will never experience the special blessings these kids bring.
"  ~Sharon Cavino
 

"For you created my inmost being; you knit me together in my mother's womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well.  My frame was not hidden from you when I was made in the secret place. When I was woven together in the depths of the earth,  your eyes saw my unformed body. All the days ordained for me were written in your book before one of them came to be."
Psalm 139:13-16

 


 

Other Albums

Living with Trisomy 13 Album for children living with Trisomy 13

Treasured Memories Album for families who embraced life & have loved and lost their precious Trisomy 13 child.

 

Have a child living with Trisomy 13 syndrome - a Patau syndrome survivor?
We would love to add your child to our Album.
Click here to send us their information.

Please visit our "Sister" Trisomy 13 - Patau Syndrome sites

Click here to visit a translation of a German Trisomy 13 photos site

 

If you are the parent of a child with Trisomy please visit Tracking Rare Incidence Syndromes (TRIS) and find out how adding your information to their database can help increase Trisomy awareness. Click here for more info...

 

 
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Click here to download printable LivingWithTrisomy13.org "awareness cards."

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA  92649

info@LivingWithTrisomy13.org

 

 

Text and graphics © LivingWithTrisomy13.org 2005-2007 All information found on this site was submitted to us directly by the families and used on this site with their permission.
Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 

Looking for ALL families who’ve had a trisomy child of any number. Whether you terminated, miscarriage, had a stillbirth, live birth - living or deceased. Including adoptive and Foster parents. Please fill out the TRIS survey  to help update the medical literature and to improve the quality and availability of medical care. Tracking Rare Incidence Syndromes (TRIS)  Click here to add your information

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