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Deadline is quickly approaching - 2008 Living with Trisomy 13 SURVEY. Investigating the common T13 experience and helping to update the current literature written on the children diagnosed with Patau Syndrome. If you’d like to participate contact us ASAP. info@livingwithtrisomy13.org

Current Prayer Requests & Needs

Please join us in praying at 3:00 pm (central time) for our beautiful children affected by trisomy 13, other genetic syndromes, as well any birth defects. For those of us who are Christian, 3:00 is known to be the hour of mercy. We ask God to shower his mercy, once again as he did at Calvary, upon our children, and all children - our families, and all families.

The 3:00 hour is also special because "3" is the special genetic signature for all persons with a trisomy syndrome. We can join together at 3:00 in our hearts, wherever we may be, to express our gratitude for having been blessed with our special children in a prayer of praise. We can ask for blessings for our children, all children, and one another at this time, knowing that all over the world other parents are praying too. We share a communion of solidarity, a vision of hope, and memories of beautiful babies and children.
Our prayer:

Thank you dear Lord Jesus, for the gift of our children. You have graced us beyond our comprehension. Please guide us in the care of these Treasures. Give us wisdom to make the best decisions for them. Give us patience and charity so that we can advocate for your precious ones. Give us fortitude, so that we will not give up before it is time. Give us peace when our hearts our troubled with worry. Bless our children with all that they need in this life.

And for our children who have gone to be with You, thank you for holding them in eternity as tenderly as we held them on earth.
 

Bless all of the little babies in this world, each is a special gift to us whether a part of our life for merely a minute or for years. Each gives us a special joy, each shares their special talents. May each of them be protected by angels, may each of them be given a chance to reach their potential. May health providers be reminded that all life has value, each life counts and all parents have the right to choose the chance for life for their child no matter what the diagnosis. The only one that knows what is to be is God, and he in his time reveals his plan to us even though we may not understand it at the time.
S. Hutchinson, Iowa

Please remember the following needs in your prayers.

5-15-08
Prayer Request!
Please pray for Bryson Nault. He was having a series of Central Apnea Episodes yesterday and it's also thought that his heart had stopped. His Daddy, Travis did CPR and got him breathing again, got the heart and circulation going and he seems to be okay now. It was really scary as it took some time to get him to come back around. Please keep his worried Mommy & Daddy in your prayers. God works miracles everyday through prayer.

5-9-08
Please pray for Mia Maria Abernathy. She was born on May 2, 2008 although she was scheduled for a c-section birth on the 13th. We were so excited. Expecting a healthy baby we were stunned to find out that she has Trisomy 13. We hope to bring her home soon and we are praying for a miracle. I am her Godmother Auntia Rita.

4-17-08
PLEASE PRAY...We need a MIRACLE!!!!

Miss Jolene, Angel  Wyatt's beautiful baby sister has just been diagnosed with Retinoblastoma
Which is a children’s eye cancer. Our family’s and friend’s hearts are just broken.

Please help us pray for a miracle and healing for Sweet Jolene’s eyes. As many of you know, the Sexton family lost Wyatt to Trisomy 13 in 2006. Surely God could bring them a healing, strength, and peace as they move forward with this diagnosis for their precious Jolene.

Please join in prayer, and please pass this prayer request to all you know, via email, prayer groups and church congregations. We are praying for a miracle for this beautiful family. We put our trust in God our Holy Father and Jesus his son for a healing of this cancer.

Jolene Sexton, little sister to Wyatt. Already family has been told possibly an eye may need to be removed, please pray for healing!

4-16-08
Please keep Devon in your prayers. He is going in for Pre-OP tomorrow and Friday, April 18th, surgery. He is having his cataracts removed. Prayers will be appreciated. They need to have the correct lens and everything needs to go smoothly and then of course we need him to keep his hands out of his eye afterwards!

4-15-08
My name is Ivan Ho and I am from Panama, Central America. My wife is six month pregnant and all the exams say that our baby is going to born with trisomy 13. I pray to God to heal my baby before he’s born and give strength to my family.

4-9-08
Hi there,
I am the mother of Christina Andresen and the Grandmother of Zoey born just 15 days ago I can say that there is no doubt in my mind that the power of prayer has blessed our family with this precious, perfect little angel. I am humbled from the experience of the out pour of love & prayer from people that don’t even know us, just because a friend or co-worker has offered up prayer for Zoey. Even children of friends have reported having their class openly pray! My very own 4 ½ year old Grandson in pre-school prays with his fellow day care friends & teachers daily. The pastor & his wife that run the daycare came to the hospital daily to offer support, love and especially prayer.
Such an amazing gift that we all at one time or another have taken for granted or not participated in and yet look at its power. I am so very blessed to have all of this gifted freely and as a result, we have Zoey. Every breath she takes, every little milestone she reaches, every time I hold her and can nuzzle her and say “You are safe, and loved so much! Gramma loves you so much”, is a BLESSING that I appreciate every day!
Thank you to everyone, and if I may send out blessings to all that wish to receive them, then here they are. Blessings & prayers of strength for the challenging times, and the power to appreciate the little blessings received every day! Warmly,
Susan Hays, San Jose, CA

4-8-08
Tenecia celebrated her 26th birthday on March 6. Also, Her mother has been called by God to be a minister, Please keep Tenecia’s mother, Petula, in your prayers.

4-3-08
Please pray for my cousin and his wife. (She was pressured to terminate her trisomy 13 child. Her mother could not see the point in "wasting" her fertile years carrying a "defective" baby.)  It really is so sad. My cousin so wanted this baby, but his wife just kind of gave up.

3-28-08
Please Keep "CJ" and his parents Maggie and Chad in your prayers. More

3-28-08
Please pray for a mother of a trisomy 13 child. She has decided today to abort her trisomy 13 baby. She is 37, happily married, this is her first pregnancy. She is 14 wks. She has not yet made the apt. Any prayers would be appreciated. She is not a believer.
Thank you!!!!!!

3-28-07
Update after surgery to remove her IV port-a-cath. Thank you for your prayers. Natalia was in and out of day surgery in under 3 hours... Everything went smoothly, she is as good as new! Many Blessings to each of you and thank you for joining us in prayer for all of our trisomy 13 families.

3-31-08
Please keep Steffy and her husband in your prayers. Mary Rose was still born on Sat 3/29 with full trisomy 13.

3-27-08
Please keep a new baby and family in your prayers. I just received a call from a friend.
Not too much info, but prayers would be appreciated, The child's name is Joshua- he was flown to LV from Reno for a heart condition, but once there, they suspect trisomy 13.
Thank you for joining us in prayer for this family.

Also, Natalia will be going in for outpatient surgery tomorrow at 8:30am. Please join us in prayer for her procedure to go smoothly without any complications. They will be removing the IV port –a-cath from her right chest area. Thank you for joining us in prayer.

3-5-05
Please keep April Lynn in your prayers. She was born less than two days ago and is having serious problems. There have been no tests done to confirm that she has Trisomy13, or Trisomy 18, but it looks likely. Please pray for her safety and health in her time of struggle.

2-29-08
Please Keep the the Mabeus Family in your prayers. Samuel is now in the arms of Jesus.
Samuel's mom also just buried her mother two weeks earlier. Please pray for healing peace and grace, for this beautiful family. May Jesus cover them with his light of healing love.

2-23-08
Please pray for Macy Baker,  Full trisomy 13. She was admitted to hospital today with really bad chest infection increase level of oxygen by 5 ltrs. Many thanks, Katrina

2-16-08
Maddy got rushed to hospital on Feb 8th due to her having trouble breathing she was put on a ventilator, she has the flu pretty bad. she is now off the vent but now has to a feeding tube and her fundo redone. she is a tough girl. and i pray she is strong enough to get threw this surgery, she is really weak right now, and doc said her lungs cant take getting sick again. so please pray she gets threw this ok. thanks  Patti

2-12-08
This request is for John Robert Martin age 3. John started this day out very badly, John is on his way to the children’s hospital in Pittsburgh , Pa John was given his meds this morning and a few hours later was found to be in a comma , or so we thought the ambulance was called and he was taken to the hospital in Brookville Pa after many tests. We are told John has Pacreatitic and another UTI So all prayers are needed for a fast recovery and a speedy trip on to be with his two sister, Grandma Deb
 

Have a child living with Trisomy 13 syndrome - a Patau syndrome survivor?
We would love to add your child to our Album.
Click here to send us their information.

 



 

 
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Click here to download printable LivingWithTrisomy13.org "awareness cards."

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA  92649

info@LivingWithTrisomy13.org

 

 

Text and graphics © LivingWithTrisomy13.org 2005-2007 All information found on this site was submitted to us directly by the families and used on this site with their permission.
Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 

Looking for ALL families who’ve had a trisomy child of any number. Whether you terminated, miscarriage, had a stillbirth, live birth - living or deceased. Including adoptive and Foster parents. Please fill out the TRIS survey  to help update the medical literature and to improve the quality and availability of medical care. Tracking Rare Incidence Syndromes (TRIS)  Click here to add your information

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