| ESSAYS BY TRISOMY 13 PARENTS
Free
literature to share with your patients |
|
Misgivings
By Barbara Farlow, mom to Annie
© 2009 The Hastings Center, Reprinted by permission. This article originally
appeared in the Hastings Center Report, vol. 39, no. 5 (2009): 19-21
WHEN WHAT SEEMS BROKEN IS
PERFECT By Barbara Farlow (Annie's Mom)
PATIENT CENTERED CARE
Barbara Farlow, mom to Annie
spoke at the University of Toronto in
the First Annual Sue MacRae Lecture On Ethics and Patient-Centred Care - June 11th, 2008
CLICK TO VIEW NOWW
The decision to accept
disability:
One family’s perspective By Barbara Farlow BEngSci MBA
A Letter to: Pediatric
Physicians, OB-Gynecologists, Geneticists & Healthcare Providers, from ThereseAnn - A parent of a
Trisomy 13 child
How Our
Babies have changed our Lives by Maria Demers
Trisomy 13 ~ A Printable
Handout
A Mother's
letter to newly diagnosed Families
Message to
All Obstetricians & Perinatologists
Message to All Physicians,
Specialists, and Doctors Alike by Mary Mabeus
Letters to Physicians
-Trisomy 13 Survival Tactics
-Patients
Plan of Care - Faith in Action
-Considerations in Making a
Specified Plan of Care
by Janina E. Arritola
How can anyone say that
these children do not contribute to society, therefore what is the point??
by Melissa Roy
|
|
Living with Trisomy 13
Focused on prayerful support and gifts of love
to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA 92649
info@LivingWithTrisomy13.org
|
All text and graphics ©
LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to
us directly by the families
and used on this site with their permission. |
|
Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela
Sullivan 2004, used with permission. |
If We Hold On Together Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.
Used with permission.
|
|
|
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy
13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional
familiar with your specific condition. The personal journeys of any parents on
this site are only their opinions and their own journey with having a Trisomy 13
child. You should consult with your own physician or other medical professional
regarding the opinions or recommendations expressed within these pages as to
your own child's symptoms and medical condition. |
|
|
|
|
 Translation
Search Specific Languages or Countries
Design & Hosting lovingly provided by::
Apke Web
Services
|
