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NEWS |
Photographer Documents Terminally Ill Infants
(CBS 5) Reporting Thuy Vu |
4-25-08
Michael is on his way May 25, 2008 to
Ironman Brazil
team-TRIsomy™ Ironman for kids
Still looking for larger sponsors, Airline flights etc...Join
team-TRIsomy™ and help where you are able.
Michael has the airline tickets covered and the entrance fee for
the race covered. Still looking for an inexpensive place to
stay. He hopes to find a kind someone to open their home, or
have connections for his stay. If you would like to help Michael
as he travels the world for Trisomy Awareness then please
contact Michael Hennessey IRONMAN
michael@ironmanforkids.com
Give him a hello and support via email when you have some time.
Follow his BLOG |
Dangers of Prenatal Testing 
April 13, 2008
Reporter: Jane Hansen -
An ultrasound screening test at 12 weeks is now considered a
routine part of pregnancy,
but an eminent British Radiologist claims the test, designed to
pick up chromosomal abnormalities like Down syndrome, is highly
inaccurate.
Also available on
Trisomy Oz Breaking News Page |
 SOFT
International Conference
July 23 -July 27
Denver, Colorado |
|
Death Talk
-
a FREE podcast available online or through iTunes, hosted by Dr.
Joanne Cacciatore and Katie Dean on the Global Grief Network.
Exploring biopsychosocial effects of tragedy and experience the
wisdom inherent in the mourning process. Topics such as cultural
responses to loss, ritualization, empiric research, and the
neuroscience of loss. |
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Minutes to Memories -
Article about Aimee Weathers and the gift of nine minutes with her
daughter Sophie Ann |
Corbin’s mom Robin helps
bring attention to Trisomy 13 as we launch March as Trisomy
Awareness Month.
News Article |
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New support Organization for Mom’s facing a terminal diagnosis Strings of
Pearls email:
stringsofpearls@gmail.com |
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MISS Foundations Featured Video
-
Founder and CEO, Dr. Joanne Cacciatore, talks about this amazing
organization. |
Not Compatible with Life, a diary of keeping Daniel
By Kylie Sheffield
Kylie (mom to Daniel) would
love to share her book with you. |
Celebrating Trisomy 13 Awareness Day
A Mother's Grief Helps Others News Article |
 Tangible Memories
MSNBC video for babies who are likely not to survive birth
Healing the Heartbreak - The Power of Baby Photos |
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Books available from SOFT
  |
After
the birth of Anna, Mom, Sarah, was
inspired to begin a business and ministry...
 B
is for Baby
"Burp-Cloths, Bibs, Blankets and More"
hand-made
baby and toddler items made with a mother's love. On behalf of each
order received, an item (i.e. burp-cloth, bib or blanket) will be
donated to a local hospital; to be distributed to babies with special
health issues, babies born premature or families in need. |
Orleans man defies predictions, lived 34 years with rare illness
Greenville Daily News, MI - Jan 11, 2008
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Parents hope for miracle for their little angel - Monitor, TX - Dec 15,
2007 |
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Trisomy Voices
A collection of AUDIO interviews with families touched by trisomy 18, trisomy
13, and other rare trisomy disorders. |
|
Please join us in praying at 3:00 pm (central time) for our beautiful children
affected by trisomy 13 |
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Don't Miss!! |
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Prenatal Diagnosis Information
Package -
Compiled by Kylie Sheffield (mum of Daniel, full
Trisomy 13) in consultation with families on this web site |
|
TRISOMY AWARENESS Ideas |
 Trisomy 13 Awareness
Bracelets - designed and sold by Daena Seland
This beautiful and one of a kind bracelet, made of sterling silver,
Swarovski crystals and pearls was designed with the hope of increasing
the awareness of Trisomy-13 and offer families a token of strength,
remembrance and most of all love. |
  When making up personal business cards, remember to add your URL addy page
to your child, hence spreading more "trisomy awareness." You never know who
may remember this site when approached by someone diagnosed with a trisomy
condition. (or Click here to
download printable LivingWithTrisomy13.org "awareness cards.")
 Create
a free video montage at OneTrueMedia for your child - add as many photos or video clips as you
like and your favorite song. Celebrate your child's life and create a
personal message to all who might view the presentation. (Be sure to add a link
to their web site or to their LivingWithTrisomy13.org page.) Then send out a
link to your child's page or montage with your holiday greeting!
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TRISOMY 13 – Patau Syndrome
IN THE NEWS |
 FREE ~New Family
Package from SOFT
|
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Healthcare professionals available to
message board members! "Ask the
Pediatrician"
"Ask the Geneticist"
"Ask the OB-GYN"
"Ask the Dentist"
“Ask the RN” ~ Labor & Delivery and NICU experienced.
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|
Google
New Search – Trisomy 13
Google
News Search – Patau Syndrome
DOGPILE – Trisomy 13 News Now Searching: Yahoo! Search, Topix, FOXNews, ABCNEWS,
And More
DOGPILE – Patau Syndrome News Now Searching: Yahoo! Search, Topix, FOXNews,
ABCNEWS, And More |
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