|
|||||||||
|
|
||||||||
|
|||||||||
|
|
||||||||
In Loving Memory
of
These
|
|
Embracing Life,
One moment
at a timeTM... |
|
Message Board for Treasured Memory Families Request Message Board Access: info@livingwithtrisomy13 |
We bless and honor these 133 families who were given a Trisomy 13 diagnosis and chose to embrace life and carry to term their precious child. Some of these children were here for only minutes - some for many years - all of them dearly loved and treasured.
 |
Presently 95 members on the Treasured Memory message board. |
 |
These families offer immediate phone support |
|
Speak Spanish |  |
Military Family |  |
Slideshow Presentation |
| Featured Treasured Memory Albums | |||
|
|
|
|
Featured Presentation:
|
|
|
|
|
|
| FULL TRISOMY 13 MEMORY ALBUMS - hover over name for thumbnail photo - click to open album | ||||||
 UNITED
STATES |
UNITED
STATES (continued) |
|||||
Ivey Marie Queen "I don't understand why this had to happen and I probably won't ever understand, but I do know I am thankful for the time I had with my little girl, there was such a peace in my heart while I was holding her in my arms." |
AL | 5 Hours |
Anna Louise Schrag "Anna also met all four grandparents, her sister Marie, and her Aunt Elaine. She was baptized by our priest and was the star of a photo shoot." |
Cuyahoga Falls, OH | 88 Minutes | |
Kendall Lynn Johnson "Kendall was a true gift from God and I wouldn't trade those few days for the world." |
Birmingham, AL | 15 Days |
Kaden Barker "I know that Kaden is an angel in Heaven and will always be with me. I have always felt lucky to have had Kaden for the time that I did and I would not give it up for anything." |
New Philadelphia, OH | Stillborn | |
James Harlan Owens, III "We miss him more than anything and have always wanted to find someone to talk to that knows how we feel. We finally have. We would love to hear from someone." |
Fort Mitchell, AL | 8 Days |
Daniel Jacob Husted "None of the family and none of the doctors expected Daniel to be able to breathe on his own… But Daniel proved that the doctors don’t know everything. As my husband says, 'We put Daniel into God’s hands and God gave him back to us, for at least a little while'" |
Toledo, OH | 27 Days | |
Sophie Ann Weathers "God is good all the time. No matter what things look like- good or bad. God is worthy to be praised. AMEN." |
Jacksonville, AL | 9 Minutes |
Trace Lee Clark "They of course gave us no hope but we were persistent..Trace taught us a lot, gave us tremendous happiness and is horribly missed." |
Washington Court House, OH | 5 1/2 Years | |
Riley James Russell Auton |
Anchorage Alaska | Stillborn |
Magen Sue Smith "Magen touched everyone that she came in contact, as she had an infectious smile and laugh." |
Wauseon, OH | 4 1/2 Years | |
Kaila Eason "Kaila was a living miracle from GOD and we are so blessed to have her in our lives." |
Chandler, AZ | 5 Months |
Steven Dean Denny "I thank God for giving us the opportunity to spend two days with Steven. God knew the outcome and he could have chosen to take Steven much earlier than he did. I do believe that everything happens for reason" |
Claremore OK | 2 Days | |
Camden Brown Gunnell "We are so grateful that we had those 3 short precious days with our beautiful son Camden. We know that he was so special and chosen that he had more important work to do for our Father in Heaven and Savior, he was needed more there than to stay with us." |
Mesa, AZ | 3 Days |
Tanner Loveless "Tanner was a blessing to us, and it was so sad to see him go so quickly. But, while he was here, I’m glad that he was able to see how loved he truly was." |
Owasso, OK | 2 1/2 Hours | |
Jennette Angelique Gauthier "My parents were able to join us and this was a wonderful closure moment for all of us. My parents had lost a son, with Downs Syndrome and heart troubles 39 year ago and never got to hold him." |
Scottsdale, AZ | 4 Hours |
Faith
Constance Carlson "We had 9 days with her, days full of hope, lots of love, and precious time we will never forget. 9 days more than we expected." Mosaic |
Stillwater, OK | 9 Days | |
Lincoln Tanner Roberts "If there is anyone that reads this and is in the Phoenix area and wants to talk to someone who has gone through the experience of having a Trisomy 13 baby I would love to talk, listen and cry with you." |
Phoenix, AZ | 18 Days |
Amaya Faith Lynch "Amaya was our true joy. We will always be thankful for the time God allowed us with her and will continue to seek His will." |
Sheridan, OR | 7 Days | |
Kellison Lillian Childers "Kellison's brother Kaleb and I miss her very much, but are so thankful we had her at all." |
Little Rock, AR | 2 Hours 51 Minutes |
Caleb Austin Dancho "If I was presented with the same situation again, even knowing the outcome, I would do it all again." |
Bangor, PA | 1 1/2 Months | |
Jessica Jayne Harwood "Jessica lived for 4 days, she was loved by soooo many. We were so blessed by her. When she fussed my voice could calm her. A blessing! She was a sweet angel who visited and saved my life (literally)!" |
Elk Grove, CA | 4 Days |
Lindsay Marie Stroup "When Lindsay died we received over 200 cards and letters, many from people we never met, but had knew her. Without Lindsay in my life I feel I would have never had the motivation to go to nursing school and spend my life caring and advocating for special needs children and their families." |
Mars, PA | 3 Years | |
Faith Anne Van Steyn "We do not see this as the death of our baby girl Faith, but new eternal life. We brought her into this world to meet our little angel and give her kisses as we sent her to our father in heaven. She was here a precious 37 weeks and 46 minutes and was loved enough for a lifetime. Some may ask us, “Was she worth it?” And we say yes, she is our daughter and a part of us forever." |
Elk Grove, CA | 37 Weeks |
Jeremiah Nigel Gilliam "Jeremiah Nigel was born on November 6, 2006 one month earlier than his expected due date. He was four pounds and eleven ounces, eighteen inches long. He was beautiful!! I fell in love with this child on site and I wanted to spend as much time as possible with him as I could." |
Pittsburgh, PA | 1 Month | |
Tucker Wesley Reite "Tucker truly is our miracle baby. I would not change him for the world. We love him just the way he is." |
Georgetown, CA | 2 Years |
Lauren Elizabeth Duggan "Lauren’s short but meaningful life taught my husband and I so many wonderful lessons. She showed us how to love unconditionally, to be grateful for what we have, to cherish the people in our life because life is too short and most importantly she showed us how blessed we truly are – God trusted us to take care of one of his special angels. Lauren’s life was a wonderful gift to our family and we are forever grateful!" |
Southeast PA | 3 Years 23 Days | |
Logan Hunter Popejoy "I have no regrets. My son taught me so much about the human spirit and the will to go on when you are given no chance at all. He was happy and he was loved and adored. Now, I still mourn for the unconditional love that I've lost, and the light in my life. His smile. His essence. His laugh. His kisses." NEW! |
North Hollywood, CA | 11 1/2 Years | ||||
Nathan David Bouligny "Nathan was sweet and wonderful and breathed all by himself. He struggled a tiny bit, and eventually just decided he would rather be with the Lord. He went very peacefully. We are so blessed to have met him and spent the time with him that God granted us." |
San Diego, CA | 1 Hour 45 Minutes |
Michael Christopher Mohr "I know that Michael is looking down on us and he is so proud of his mommy and daddy for giving him the chance to have a life. It is an incredible feeling knowing that Joe and I are the mommy and daddy of an angel." |
Wallingford, PA | 1 Hour 36 Minutes | |
Effie O'Brien "We have been very blessed, and I can’t thank God enough for creating her special and giving her to our family! I also am grateful to God for giving me all of that love for her and the strength to care for her and watch her die and yet be completely at peace about it. " |
San Francisco, CA | 1 Month |
Levi Edward Bagwell "Please let me encourage you...if you have been given a fatal diagnosis and don't know if you can get through it or not.... I want you to know that you will experience a love like you have never imagined." |
Central, SC | 4 Hours | |
Sebastian Gonzalez "We're very fortunate to have enjoyed him those magical days. He did not have very many health issues, and we know God gave us an opportunity to spend quality time with him."
 |
Visalia, CA | 2 Months |
Rhema Evangeline Sewell "We miss our Rhema Evangeline so very much - there are just no words. But God's ways are bigger than ours. And even though this whole journey has been a bit overwhelming, we know one day we will go to our Rhema, just as she was sent to us. She led such a full life for only 12 weeks! " |
Myrtle Beach, SC | 12 Weeks | |
Macie Grace McCloskey "We had the best 6 days of our lives with her before she went to be with Jesus. I was so blessed to give birth to this incredible angel and then hold her in my arms while she slowly slipped into Jesus' arms." |
Somers, CT | 6 Days |
Lilah Branden Hoey "We had great support from our families, but we were truly petrified of the decisions we had to make and what we should do. However, each time a decision needed to be made, God was right there and we had peace in our hearts." NEW! |
Myrtle Beach, SC | 8 Days | |
Caterina Mary Ayers "Each parent of Trisomy-13 child is faced with challenging, life altering decisions that no parent should ever have to make. You do your best with the information you have and try to only look forward. When it is over you keep your child alive in your mind and in your heart. You try and make sense of the complex lessons that this child has taught you and try to move on with life, a different and better person." |
Stamford, CT | 59 Days |
Christian Konner Deaton "God had granted my prayer and gave everyone the chance to meet Christian as well as giving us a couple of days with him." |
Rapid City, SD | 2 Days | |
Diana Victoria Rodriguez " Don't lose faith, God knows his plan for us, and even though we may not know what it is, He knows, and that should be enough. These babies are very special, and we are very special for having them." |
Hollywood, FL | 16 Days |
Jaret Adael Thompson  "I don't care what the reports are. We love this child, this sweet and precious child from God. This little blessing in a special package. I am committed to love and care for him." |
Sioux Falls, SD | 2 Days | |
Lena Rose Seltzer "I got to hold Lena in my arms by my heart and cuddle her up until she took her last breath. I have no regrets. We just miss her so much and we will never understand the reason for this, but will just have to trust God we might know the answer one day." |
Jacksonville, FL | <1 Day |
Trevin Patrick LaBeth "Trevin taught us many things though his short time with us. In his time with us he showed us just how precious life is. There will never be a day where we are not thankful for the time we had with him." |
Converse, TX | 2 Months | |
Katie Slotkin "Katie brought a lot of people together, from different backgrounds, families and religions. The community we lived in really reached out to us and our little girl. We would love to talk with other parents facing Trisomy 13 and offer any support we can." |
Jacksonville, FL | 2 Months |
Claudia Isabella De Luna "Claudia Isabella has left beautiful memories in our lives and that I feel so much closer to God after all this happened because I know He was, like it is written in the Bible, 'My Prince of Peace, my Refuge, my Shelter, etc.' and I know that all of our little babies are together probably saying 'If our mommies could only see what we see, they wouldn't hurt so much'" |
Corpus Christi, TX | Stillborn | |
Katherine Elizabeth Verjano "The time with my precious Katherine Elizabeth was just but a second, but it is a second that I would live over and over again if I could. In that brief time my Katherine Elizabeth brought so many people together, brought so many people closer to God by praying for her and our family, she brought joy and love to our family, she did so many wonderful things, even more so then many of us have done in our life time." |
Miami, FL | 14 Hours |
Kelli Dolly Cullivan "Our loss is great, but how wonderfully lucky we were to have been a part of Kelli's life. That may sound like a cliche, but she really was the bravest child I have ever known and she taught us lessons that changed our lives." |
El Paso, TX | 3 Years | |
Gemma Therese Holihen "Our little Gemma has taught us how to love deeper, experience gratitude and treasure all of the gifts we have been given, especially the precious minutes we had together with our little Gem in our arms and the 8 1/2 months we had with her living inside me. God is good. He knows our hearts desires and He does answer prayers. May God bless you in your journey. " |
Naples, FL | 52 Minutes |
Kambry Danielle Tolbert "It’s hard to put into words how my daughter has changed me. Kambry has taught me so much about love and life. Her heart was so pure and her love was so strong that she only needed 4 hours and 21 minutes on this earth to do the works that our Lord had planned for her." |
Sachse, TX | 4 Hours 21 Minutes | |
Albert Luis George Jr "Albert passed sitting on his knees and his head bowed as if he was praying." |
Sunrise, FL | 7 Years |
Phillip Cole Palacios "Although Phillip's life was short, we would never have changed our minds. He was the biggest blessing in our lives. He brought out the best in us and our families." |
San Antonio, TX | 32 Hours 58 Minutes | |
Anthony Emmanuel Arritola "Anthony Emmanuel your courage and strength inspired many, and made me a better man. I will never forget how you called me Da. We will forever love you, and I can't wait until we meet again."
|
Atlanta, GA | 1 Year |
Amber Tammie Hunt "Amber was a very happy person who brought joy to everyone who knew her." |
St. George, UT | 24 Years | |
Trinnity Raspberry "We spent the most precious time with Trinnity and I wouldn't trade it for the world. " |
Fairburn, GA | 3 Days |
Ruth Ann High "Ruth touched so many people's lives. I am still processing the ripples of energy her life created. I do not think I am capable of fully grasping that energy. We miss her so much." |
Charlottesville, VA | 9 Months | |
Grace Marchman "We are not angry at God. Quite the opposite is true. Our faith has been strengthened through this trial. We have been overwhelmed by his grace and the love of his children each step of the way." |
Fayetteville, GA | 14 Hours | Bethany Gregory "If anyone has any questions about Bethany please don't hesitate to email me. I would be happy to help in any way I can. I know that each child is so different but I think there are things that are similar that can be helpful." |
Midlothian, VA | 3 Months | |
Cereus Placker "Cereus died peacefully in my arms." |
Schofield Barracks, HI | 5 Minutes |
Angeliyah Grace Izzi "We don't consider ourselves to be the strongest people, but God truly was our strength throughout the delivery, the rest of the day and all weekend. We're just so grateful for the time that we were able to have with Angeliyah." |
Olympia, WA | 32 Minutes | |
| Bedford, IA |
Stillborn |
Joseph Charles Vigil "Joseph and many other children who seem to leave us so early in their lives have fulfilled their calling and now we can be rest assured that they are in Heaven Healthy, and Happy. They continue to fulfill Their purpose even after they have left us." |
Yorktown, VA | 18 Hours | ||
Bennett John Meyer "Every single day of Bennett's life was happy and precious, and I would not change anything or take back any of the time we had with him." |
Dubuque, IA | 5 Months |
Rose Marie Sours "We only had Rose a short time here on earth, but we believe that we will have her again in the eternities when we go to heaven and join her. She went ahead to prepare the way for us. Although she was physically here only a short time, she is still with us in our hearts and will always be. I am grateful to have been blessed by having her for any amount of time. She changed me and my life, for the better." |
Richmond, VA | <1 Day | |
Ethan Richard Boone "My husband and I and our 2 year old daughter Abigail then took turns holding Ethan and saying our good byes we also took the time to explain to Abigail where her brother Ethan went." |
Rock Valley, IA | 50 Minutes |
Noah Arthur Hedlund "Our son, who we named Noah Arthur (Noah because it means peaceful and content; Arthur after his Grandfather), blessed us with his presence for the next 12 weeks before passing away on May 17, 2006." |
Bothell, WA | Stillborn | |
Ian Daniel Kinne "We would be happy for anyone with questions or in need of support to call us" |
Kootenai, ID | 1 Month |
Sawyer Michael Karau "We wanted to cherish every moment with him while he was still "here" with us - 45 minutes that was a LIFETIME of hugs, kisses, cuddles, and all the love a mother can share with her baby." |
Marshfield, WI | 45 Minutes | |
Maliha Khan "Besides her cleft lip/palate, she was perfect. We didn't see any other abnormalities. I was sad that I did not get to see her open her beautiful eyes." Robertsonian Translocation T13 |
Algonquin, IL | Stillborn |
Hannah Faith Mullins "We wouldn't trade ANYTHING in this world for the time we had with Hannah. The mark she left on our hearts will forever be there. We thank God for choosing us to be Hannah's Mommy and Daddy. She was definitly a gift sent down from heaven. She couldn't stay long, but her mission in life was fulfilled. She touched so many hearts and lives in the short time she was here." |
Nicholas County, WV | 3 Days | |
Gabriella Harmon "We miss Gabriella. I think of her every day. I remember that she was sweet and love to be cuddled." |
Carterville, IL | 1 Month 26 Days |
Giovaniel Ian Juarbe Hernandez |
Toa Alta, Puerto Rico | 7 Months | |
Alex Heagy "We just took turns rocking Alex for the next few hours, crying, telling him good-bye and we're sorry. That was the shortest, but longest 17 days of my life!!!" |
Central IL | 17 Days | AUSTRALIA |
 |
||
|
Eliza Bernice Delgado "When she flew with her wings I was so happy because I at least could thank God for letting me hold her. I held her in my arms and told her that I loved her and I was even able to sing her the song that I always sang every night when she was in my tummy. And I was so happy I could be there to say bye to her. "
|
Chicago, IL | 6 Hours |
Thomas Patrick Whittle "Thomas changed my entire view of the value of human life and I realized how precious we all are." |
Adelaide, Australia | Stillborn | |
Brendan Border  "We miss Brendan so much but I try to remember what a blessing he has been to us, our families and friends. He has made such an impact on so many people and has opened up a lot of peoples hearts and minds to be more tolerant and accepting of people and situations they could not understand before he came into our lives." |
Elsah, IL | 12 Hours |
Daniel Sean Sheffield "He was in my arms and surrounded by those who love him. His Nana, who lives on the other side of Australia, was able to make it to be with him for an hour or so before he died, and it felt as though he held on just to meet her." |
Darwin, Australia | 32 Hours | |
Rebecca Rae Hassett.jpg) "Rebecca was not an abnormality or a syndrome, she was our baby and we love her. A precious gift from God. I am grateful for the time we did have with her." |
Fairbury, IL | Stillborn |
Luke Steven Prothero "We have had the most amazing experience with Luke. We are so lucky to have been chosen to love Luke for his brief time on earth, boy did he teach us a thing or two, and continues too. I feel an absolute veil of love covering my body, and know that I've my sweet boy to thank for this." |
Melbourne, Australia | 58 Hours 13 Minutes | |
Joseph William Donovan "God works in mysterious ways. I used to resent God for taking Joseph up to Heaven with him. I now am thankful and feel blessed that God chose Joseph. For some reason, my son was chosen as one of the ones to be fortunate enough to be in His hands." |
Glen Ellyn, IL | 2 1/2 Hours |
CANADA |
 |
||
Alyssa "Alyssa was our little angel and will always hold a special place in our hearts." |
Peoria, IL | 6 Months |
Sabrina "I'd like to believe Sabrina truly did enjoy her life regardless of what life had to offer her. She was beautiful throughout. If only I could be more like her. I hope one day soon I will be able to show you all just how beautiful she was. She was our superstar!" Partial with Hypomelanosis Mosaicism |
Canada | 15 Years | |
Zachary Mykal Kacmarynski "Zachary was many things in his short life and still is. He is a son, a grandson, a cousin, a nephew, a friend. He has several things in his life, grandparents, aunts and uncles, cousins, a mommy and a daddy. And a God who obviously loves him so much that he gave him to us." |
Urbana, IL | 90 Minutes |
Anne Mary Farlow "The ultimate irony is that this little girl who seemed so broken, flawed and seemingly without purpose or value, was in fact, perfect after all." |
Canada | 80 Days | |
Reese Lorene Engel "She touched so many lives in that short amount of time. We are so glad we made the decision we did and we are so happy we were able to spend the time we could with her." |
Topeka, KS | 1 Hour 9 Minutes |
Elizabeth Carriere " Elizabeth was our world, our life and our pride and joy. She loved to dance with mommy and daddy. She loved when mommy and daddy sang to her. She loved going out for walks on sunny days. And she especially loved going for walks in the mall. We treated her as if she was a healthy, "normal" baby and we did things with her we would have done with any other child." |
Brampton, Ontario, Canada | 11 Months | |
Ezekiel Samuel Weatherford "As I look back over the last few months, one of the things that stands out is that joy is a choice. Sometimes joy is a moment-by-moment, day-by-day choice. Sometimes it’s easier to choose than at other times. My joy comes from my relationship with God. As difficult as it was to lose Zeke, I have a experienced a peace that surpasses all understanding – that peace can only have come from God." |
Olathe, KS | 35 Minutes |
Tyler Ray Biffis "Just after Tyler died, I found a plaque in a mall store which I would never normally even go into, not my type of stuff. I found a coaster that said “Love like you’ll never get Hurt.’ I felt very strongly that this was something I needed to have. I bought it and realized that was what Tyler wanted - he wanted to teach those lucky enough to meet him that life is love. It is really that simple." |
Elora, Ontario Canada | 4 Months | |
Corbin Glen Flax "I had hoped and prayed for more time with my precious gift Corbin, but God gave me 70 wonderful minutes that I will never forget. I don't believe I have ever given or received such an enormous amount of love in such a short period of time, nor will I ever again." |
WaKeeney, KS | 70 Minutes |
Sara Paige Grandy "I helped bathe and dress her. I helped take her handprints and footprints. I got pieces of her beautiful hair. I did as much as I could, I was taking care of my baby girl no matter what." |
Garnish, Newfoundland Canada | 1 Month | |
Matthew Troy Delaune "We were blessed to have 7 hours and 49 minutes with Matthew. My beloved son passed away in a room full of loving family members." |
Lafitte, LA | 7 Hours |
Myla Mary Faith Banman "We want to be able to hold Myla and love her, not have them take her away and put her through a lot of pain. Yet we wanted some measures taken so that we still give her a fair chance. " |
High Level, AB Canada | 2 Days | |
Maria Therese Sullivan "Maria Therese has touched so many lives. The medical staff cried many tears with us. They were so good. They let us do what we needed to do to finalize her death. " |
Lisbon Falls, MA | 2 Days |
Bennett-Chadlen Roy "To any of you out there that have just received this diagnosis for your precious cargo....please do not give up hope. My Bennett is proving to be a miracle in the making. I do not know what my future with him is....but I can tell you most certainly I am enjoying to the fullest each day and each kick we have together. There are no regrets...only the deepest love imaginable for my darling boy...my Bennett :O)" |
Manitoulin Island, Ontario, Canada | 8 Days | |
David Michael Whittenton "David Michael was born even though there was no life he was the most wonderful perfect baby boy and I am so happy that he was here and I was so happy that I had that chance to see his tiny face and hold his perfect hand. I am so grateful that he felt no pain and he did not die alone he was with me he just went to sleep."
|
Lusby, MD | Stillborn |
Nicholas Wyatt Usher "Jon and I have really taken the motto one day at a time to heart. Each day is special and we focus on that and try not to spend so much time worrying about what will happen tomorrow." Translocation (13-14) |
Medicine Hat, AB, Canada | 125 Minutes | |
Ethan Sydney Ratzow "People have asked me if I feel angry, and ask Why Us, but I don't, I know that God chose us to be the parents to Ethan for a reason. I think he knew the strength of our relationship with each other and with God was strong enough to withstand this tragedy - in fact it has given us a closer bond with each other and God. " |
Rochester Hills, MI | Stillborn |
Melina Demers "Melina touched our lives in a way that we cannot explain. And although our hearts are broken and we long to hold her again, we take comfort in knowing that she is up in Heaven with Jesus - looking down on us with her new eyes. If we could do it all over again, we would not change a thing." |
Ottawa, Canada | 2 1/2 Months | |
Andrew Michael Helmer "To anybody getting prepared on having a baby with Trisomy 13, please research...I wish I would have been given more options." |
Canton, MI | 1 Day |
Kia Lien Emma-Lee "I'm almost past sad, I'm so very happy that God picked us to treasure this gift Kia. And although I have gone through all those periods of grief, I would pick having her for that brief period in time to not having her at all!" |
Saskatchewan, Canada | 17 Hours | |
Abbie Joy "We spent two week holding, talking and loving her. Our other children Ashleigh 6 and Drew 4 came up many times to see her and touch her." |
Grand Rapids, MI | 2 Weeks | CHILE |
 |
||
Chad James Elliston "He outlived all expectations of his illness longevity due to how we accepted him. Please believe, its so important, love and care for them, treat them normal. This is all they will ask of you." |
Orleans, MI | 34 Years |
Angel Mamani Morales " I enjoyed Angel and giving to him so much love...and he gave me tender caresses and sweet smiles that makes my heart full of happiness." |
Santiago, Chile | 1 1/2 Years | |
Ellison Kalilyl King "In His great way, God granted us the miracle of 10 wonderful hours with our little bundle of joy...she is so precious and beautiful. She went peacefully from her Mommy's arms into Jesus' arms at 4:14pm exactly 10 hours from birth...Our little lamb is in heaven now." |
Ann Arbor, MI | 10 Hours | INDONESIA |
 |
||
Carson James Morris "For myself the life of this little boy Carson has changed my perspective on just about everything. His parents and extended family and friends were blessed with 3 weeks with this amazing little man. He has touched all of us so profoundly and I cannot imagine not have had him in our lives at all." |
Harrison Township, MI | 3 Weeks |
Gracia Altehta Putri |
Jakarta, Indonesia | 9 Months | |
Caileigh Lynn DeWitt "We were strongly encouraged to terminate my pregnancy which I refused to do. If Caileigh was to die it wasn't going to be because of me. I loved and wanted my child very much no matter what was wrong." |
Marshall, MI | Stillborn | MEXICO |
 |
||
Nolan David Vetor "I take comfort in knowing that when I let Nolan's hand go this morning, Jesus took his hand from me and walked him into Heaven!! I hurt and long for more time with my little Nolan but, appreciate every little moment I spent with him." |
Royal Oak, MI | 5 Days |
Jorge Sak "..the most magical and fulfilling 19 minutes of my life began. I started to talk to him, to hug him, kiss him and thank him for hanging on to the last minute and giving me the absolute privilege of getting to see him alive and to get to know each other. That he was very brave and so absolutely perfect in every way, that he was beautiful and that he was my own little angel." |
Mexico City, Mexico | 19 Minutes | |
Samantha Renae Wellman "They left us with Samantha for a while to say good bye - she looked so perfect and I didn't understand how they could say something was wrong. She weighed only 2 ounces and was 6 1/4 inches long but every part of her looked perfect. 10 fingers 10 toes (my toes). A beautiful little baby and she was gone." |
Belle, MO | Stillborn |
Daniela Lozano Trujillo "WE ENJOYED EVERY MINUTE, DAY and WEEK WITH HER. ENJOYING LIKE IT WAS THE LAST DAY." |
Monterey Mexico | 4 Months | |
Reese Makenzie Elliott "Reese brought so many families closer, so many got back in touch with their children. They hugged them a little longer and cherished their touch more and stopped taking the love of their child for granted. Many people loved Reese that never even met her, but so many people over this land heard her story and told it to another, then another… We loved how she touched every person’s heart that met her and also anyone who heard her story." |
Ozark, MO | 80 Days | NETHERLANDS |
 |
||
Sydney Michelle Kittinger "We love her so much and she is a part of our daily conversations in our family." |
St. Louis, MO | 5 Days |
Fleur Osté-Blom "Fleur lived for 7 hours and 7 minutes. Of course this was a short life; but it was all so worth it. We were able to love her and hold her in our arms. And now she is in the most wonderful place you can imagine: in heaven with the Lord. This knowledge also gives us very much strength and keeps us going." |
The Netherlands (Holland) | 7 Hours | |
Taylor Marie Pressley "We will always have Taylor living inside our hearts." |
St. Louis, MO | 1 Day | NEW ZEALAND |
 |
||
Julian Darenger Conway " I am grateful God gave me those few months with Julian so close to my heart. He made me a better person with a greater understanding of life and the things we take for granted. He will forever be in my heart." |
Greenwood, MS | Stillborn |
Armani Hope Bell "Our beautiful daughter Armani was born on November 22nd 2006 and was with us for one cherished hour on her way to heaven. She was the cutest little thing I had ever seen, she'll always be my Princess !! " |
Auckland, New Zealand | 1 Hour | |
Paul Wyatt Sexton "We were singing "Jesus Loves Me" to him and he opened his beautiful blue eyes and smiled - it is a gift I will always treasure! ....And what an impact he has had on us; teaching us about the value of life and quality of time, and so much more." |
Starkville, MS | 3 Hours 1 Minute | PERU |
 |
||
Gina Rosetta Samuels "I knew that no matter what condition Gina had, we loved her, she was our daughter, and we were going to carry her and love her all of her life." |
Matthews, NC | 9 Days |
Johanna Rojas
 "All we want is that the world know about these kids and how great they can turn our lives into."Mosaic |
Lima Perú | 22 Years | |
Angel Craig "We didn't have long with her maybe a few seconds at the most but she was the most prettiest baby I have ever seen. Jesus is taking good care of her and I know one day I will see her and when I do she is going to say welcome home mommy, look what I did. I can’t wait to see her again." |
Spartansburg, NC | 2 Minutes | ROMANIA |
|
||
Gabriel Olson "From the very beginning of this journey God has just placed such an amazing peace and strength in us, and surrounded us with such wonderful people. We have been so blessed to have been able to have carried God’s precious little angel and we both thank God every day for that chance. We know that Gabriel has changed our lives and we are excited just to watch all the other miracles that God has in store for us." |
Bismarck, ND | Stillborn |
Maya Gindele "We had Maya in our loving arms for four months. We loved her as we love so much and we miss her every second." MosaicNEW! |
Baia Mare, Romania | 4 Months | |
Kalysta Rae Grabar "We will never be the same; our love will be deeper, our joys will be greater, and our lives will be fuller, because we shared her moment." |
Bismarck, ND | 2 Days | QUATAR |
 |
||
Kylie Ann Cyza
 "Her family, which is my two parents, three brothers and two sisters spent the day with her taking turns holding her and telling her how much she was loved before she passed away. I still think of her often and wonder what our lives would have been like had she lived. " |
Columbus, NE | 5 Days |
Ryan Todd "Ryan touched so many people’s lives! God definitely had a purpose with his life. And we don’t have any regrets. After all, we’ve learned a lot from Ryan, we learned the true meaning of unconditional love." |
Doha, State of Qatar | 2 1/2 Months | |
Jillian Gaudet Hadley "Through all this grief, I do not for one instant regret having Jill. I do not regret HER. She is worth all of this pain, all of this sorrow. She is everything to me. We will never be the same." |
Newmarket, NH | 18 Days | SWEDEN |
 |
||
Gianpaola Teresa Verrico "We were truly blessed to have had the time with her and enjoyed her tremendously. We in no way regret our decision and feel honored that we were chosen to be the parents of such a special little girl." |
Florham Park, NJ | 25 Days |
Tindra "We are so happy for the years that we got with Tindra. She's the best that ever happened to me. I will never forget her." |
Vasteras, Sweden | 2 1/2 Years | |
Austin Sean Hampton "We love Austin very much and feel so blessed that we have had this much time with him." |
Las Vegas, NV | 38 Days | UNITED KINGDOM |
 |
||
Marguerite Alice Rose "Marguerite was lovely – strong, spirited and special. We thought she was beautiful. She was perfect because she was ours and she had held on long enough to meet us. We discovered that when you love someone you see them with more than your eyes. I hope she thought the same about us." |
Bedford, NY | 4 Hours |
Febe Allison "We were told the usual things, "not compatible with life" and "prepare for the worst", but I wanted to write this to tell you not to listen to the doctors." |
Essex, England | 1 Year | |
Naylah Granger "I WAS TOLD MY CHILD HAD TRISOMY 13 AFTER BIRTH...NOW SHE IS GONE AND I MISS HER SO MUCH
|
Brooklyn, NY | 1 1/2 Months |
Macy Mae Baker "We have learnt so many things and we are so lucky to be Macy's parents." |
Northamptonshire, England | 20 Months | |
|
Norwich, NY |
2 Hours |
Toby Robert Smith "Toby touched so many lives in his short life. We miss him so much and we would do anything to have those 3 days again. We are so, so glad we met Toby." |
Shrewsbury, Shropshire, England | 3 Days | ||
Ashley Dvorsky "We were blessed to have had her for 23 days. She was loved so much. She is our little angel who saved her twin sister's life." (Mosaic) |
Port Jefferson Station, NY | 1 Month |
Ryan Matthew "Having Ryan was one of the greatest things that ever happen to us, even though his life was short he filled our hearts with joy, to have had the chance to hold him and kiss him is worth more than anything in this world to us. He is now one of gods angels looking down on us smiling." |
Havern Northern Ireland | 1 Day | |
Rosalie Marie Honis |
Watertown, NY | 1 Day |
Jack Charnley "A little Angel, now in heaven, to look down on us with love, your pain now gone, you're spirit free to watch over from above..." |
Allanton, Glasgow, Scotland | 28 Months | |
Nalani Angel "Oh goodness how difficult my journey has been, but nonetheless I am grateful for Nalani. She made me such a strong person and i couldn't have asked for a more perfect baby." |
New York, NY | 5 Months | ||||
| MISDIAGNOSED with TRISOMY 13 - Wrong Diagnosis of Genetic Syndrome or Genetic Profile Abnormalities - click name to open album | ||||||
Samuel Mabeus "The gift of patience, understanding, acceptance, friendship, and selflessness are among the many gifts that I have personally received from having a special needs child."
|
Severna Park, MD | 19 months |
Zahra Abdallah "In the two days she spent with us Zahra touched our lives in ways we could never imagine possible. We accept that she has physically left this world but her spirit will live within our hearts forever. Her memory will never fade. We will always be the parents of adorable twin girls." |
Australia | 2 Days | |
|
|
Please visit
our "Sister" Trisomy 13 - Patau Syndrome sites |
Living with Trisomy 13
Design & Hosting lovingly provided by::
|
to help update the medical literature and to improve the quality and
availability of medical care. Tracking Rare
Incidence Syndromes (TRIS)
Translation