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  Embracing Life - One Moment at a TimeTM

LivingWithTrisomy13.org

 

Deadline is quickly approaching - 2008 Living with Trisomy 13 SURVEY. Investigating the common T13 experience and helping to update the current literature written on the children diagnosed with Patau Syndrome. If you’d like to participate contact us ASAP. info@livingwithtrisomy13.org

IMMEDIATE TRISOMY 13 SUPPORT

Phone & E-Mail Support – Offering Support to Those Facing "Incompatible with Life" or "Failure to Thrive" Issues
 

If you'd like to share your story on this site click here

Do  you want to talk with some as soon as possible?
These Families are available for immediate phone contact. Please leave a message and they will  return your call if not home.

=Also speaks Spanish
AZ Arizona Mark & Jill Roberts
CA California Barry & Deidri Alderson
  Jim & Lori Reite
  Ahide Garcia
FL Florida

Stephen and Lizzy Slotkin

  Ricky & Lizabeth Verjano
GA Georgia Janina and Rick Arritola 
IL Illinois Leticia Delgado
MD Maryland Mary Mabeus
  Cheri Whittenton
MI  Michigan Jackie Risner
OH Ohio Amy Barnhart

PA Pennsylvania

Rick and Becky  Dancho
  Tina Arbogast
TX Texas John & Kristi Poulin  
SD South Dakota

Aaron & Gina Lynch

WA Washington Tami Izzi
   
Ottawa, Ontario, CANADA Brigitte Sarte-Dance
   
Northamptonshire, England Katrina Baker

 

Site facilitator:
Therese therese@livingwithtrisomy13.org
(CA California)

Considering Abortion - Termination?
Are you feeling pressured to Induce Early?


We have women who are available to talk to you if you are considering termination.

Some of these women have had an earlier termination and then went on to carry their trisomy 13 child.

Some thought abortion was the best choice with all the information they were given, they were not offered any hope of life and urged to terminate, they were never told their child could possibly reach their arms. To view their stories and get contact information click here.


 

Newly diagnosed with a t13 child?
We'd love to send you a Bear.
We'd love to send you a Bunny.

Would you like to visit with other families on this site via the message boards?  General topics, Prenatal Living and a special continuing on Treasured Memory board.

Back to Trisomy 13 Support, Resources & Links
General Support

Prenatal Support
Grief Support

Meet our Trisomy 13 Families and their Children
Prenatal Ultrasound page
Children Living with Trisomy 13
Treasured Trisomy 13 children

 

 

 


 

Click here to download printable LivingWithTrisomy13.org "awareness cards."

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA  92649

info@LivingWithTrisomy13.org

 

 

Text and graphics © LivingWithTrisomy13.org 2005-2007 All information found on this site was submitted to us directly by the families and used on this site with their permission.
Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 

Looking for ALL families who’ve had a trisomy child of any number. Whether you terminated, miscarriage, had a stillbirth, live birth - living or deceased. Including adoptive and Foster parents. Please fill out the TRIS survey  to help update the medical literature and to improve the quality and availability of medical care. Tracking Rare Incidence Syndromes (TRIS)  Click here to add your information

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