Home SEARCH About This Site Site Visitor Comments Donate Website NEWS & UPDATES Contact Us
Trisomy 13 - Patau Snydrome - Photos, Support and Resources

  Embracing Life - One Moment at a TimeTM

LivingWithTrisomy13.org


Sponsor

A Story of Regret

 

 

 

Letter from Elisabeth
 

Two of my children are in heaven.   One is in heaven because God took her home.  Little Katie was born with Trisomy 13 and lived for only two months.

My other child is in heaven because I killed him. I was a teenager, and when I found out I was pregnant, I aborted so I would not have to tell my parents.  

I am writing because I want you to know which choice I regret, and which choice I delight in.

I look back on Katie’s life with deep joy and satisfaction.  I wasn’t a perfect mom even for those two months; there are things I’d do differently if given the chance!  Yet I look back with the satisfaction of knowing how much I loved her and how well I cared for her.  I think of her in God’s presence - in the presence of the Living God! - and I am filled with deep joy.

My other child is in God’s presence too, but that thought sends me to my knees.  The law says it was my choice to make, but I knew even back then that life and death is God’s business.  I made a decision no human has the right to make, the decision to end the life of an innocent child.  

Five years ago, when my husband and I found out our baby had Trisomy 13, we struggled with the thought that our child might suffer.  Maybe, we thought, it would be selfish to go through with the birth.  Maybe the compassionate thing would be to abort before she ever had to struggle.  

Then we remembered that plenty of people suffer and yet still want to live as long as they can.  Who were we to decide that she should die so she might not suffer?

I also thought about what might be ahead for us.  I knew that some Trisomy children live for many years, and I realized she might need total care.  I worried about the strain on our finances and on our marriage.  Would we be able to handle it?

Here I was, years after my teenage abortion, facing the decision to abort again, and just like the time before, for selfish reasons.  Once again, I was afraid of the way a tiny, innocent baby might change my life.  Would I be able to handle it?

Over the course of Katie’s pregnancy, I thought a lot about this question.  What did I really fear might happen to me if I couldn’t handle it?  Was I afraid of having a nervous breakdown?  Was I afraid I might die? I decided to handle the challenges the same way anybody does--by walking through them one step at a time.  

Life and death is God's business.  You can handle what's ahead.  Your job is simple: just love your children and take care of them the best you can.  

By Elisabeth Slotkin (mom to Katie)

Contact Elisabeth at: (904) 730-9732
(904) 476-6673 (cell)   Call anytime
eslotkin@comcast.net

 
 

 
Physician's Home

Not Compatible with Life, a diary of keeping Daniel
By Kylie Sheffield

Prenatal Diagnosis Information Package - Compiled by Kylie Sheffield (mum of Daniel, full Trisomy 13) in consultation with families on this web site

Articles on Eugenics, Ethics, Selective Abortion, Selective Induction and the killing of Disabled Children

Personal Qualms Don't Count: Hospital Forces Nurses To Participate In Genetic Terminations 
by MARNIE KO

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA  92649

info@LivingWithTrisomy13.org

 

 

All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

Translation
Search Specific Languages or Countries

 

Design & Hosting lovingly provided by::
Apke Web Services