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  Embracing Life - One Moment at a TimeTM

LivingWithTrisomy13.org

 

Deadline is quickly approaching - 2008 Living with Trisomy 13 SURVEY. Investigating the common T13 experience and helping to update the current literature written on the children diagnosed with Patau Syndrome. If you’d like to participate contact us ASAP. info@livingwithtrisomy13.org

Living With Trisomy13 Message Board

NEW - healthcare professionals are available to message board members!

  • "Ask the Pediatrician"
  • "Ask the Geneticist"
  • "Ask the OB-GYN"
  • "Ask the Dentist"
  • “Ask the RN” ~ Labor & Delivery and NICU experienced.

Click to join the Livingwithtrisomy13 YaHoo Message board (Family Support)
 

 The message boards below require an invitation from the moderator

General LWT13 (Living with Trisomy 13) YaHoo Group - Message Board (for all topics - prenatal, living and grief support)

Members: Click here to access this Message Board

If you have shared your story on this site, and would like to become a member of the Living with Trisomy 13 message board Click here to request message board access

If your child has been diagnosed with Trisomy 13 Click here to request message board access.

Special Treasured Memory YaHoo Group - Message Board for those continuing on after the Loss of a Trisomy 13 Child

This Treasured Memory message board is private to those who have shared on the Treasured Memory Album page.
If you would like to share your Treasured Memory story on the LWT13 site Click here to send your child's information to info@LivingWithTrisomy13.org 

Members: Click here to access this Message Board

If you have shared your story on our Treasured Memory pages and would like to become a member of the Treasured Memories message board Click here to request message board access

NEW Special Message Board for Grandparents Grieving the Loss of a T13 Grandchild

Are you a grandparent of our Living with Trisomy 13 Treasured Angels?   Request Message Board Access

If you are already a member of the Grand Memories Yahoo group message board click here to access 

 Spanish Message Board
Si usted ha compartido su historia en nuestras pagina de Treasured Memory y
quisiera ser miembro del tablero de mensaje en español presione quí para
solicitar el acceso

Presionen aquí para solicitar el acceso del tablero del mensaje en Espanol
  
Miembros: Presionen aquí para tener acceso al tablero del mensaje en español 
 

Click here to download printable LivingWithTrisomy13.org "awareness cards."

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA  92649

info@LivingWithTrisomy13.org

 

 

Text and graphics © LivingWithTrisomy13.org 2005-2007 All information found on this site was submitted to us directly by the families and used on this site with their permission.
Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 

Looking for ALL families who’ve had a trisomy child of any number. Whether you terminated, miscarriage, had a stillbirth, live birth - living or deceased. Including adoptive and Foster parents. Please fill out the TRIS survey  to help update the medical literature and to improve the quality and availability of medical care. Tracking Rare Incidence Syndromes (TRIS)  Click here to add your information

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