Washington Court House, Ohio (OH)
 
Amy Barnhart is available for immediate support by e-mail patamybarnhart@yahoo.com
or phone 740-463-6225

Trace Lee Clark was born on May 26, 1997 with mosaic Trisomy 13. His problems were mostly at birth and there was no prenatal dx so he qualified for ecmo as he wasn’t breathing. He had problems with blood sugar and blood pressure. They of course gave us no hope but we were persistent and he then graduated to a vent then he got a ng tube and oxygen and was sent home.

He had OT and PT and eventually sat, crawled, walked all independently. He finger fed and drank from a sippy cup. He had kidney and gastro reflux for several years. He was never back in the hospital until October of 2002 when he developed seizures. Started out as blank staring and then progressed.  

The seizures ultimately caused his death March 17, 2003.  He loved blues clues, barney, music, cheese and hot dogs.  He had a wonderful sense of humor and went to school everyday at a progressive school. He taught us a lot, gave us tremendous happiness and is horribly missed.  

I attended soft conf. in Pittsburg and then the whole family went to soft conference in Disney.  I'm here to help in any way I can so feel free to contact me with any questions.
  
Hugs to you all,
  
Amy Barnhart  patamybarnhart@yahoo.com

Trace was Born & now rests in Ohio,
Parents are living now in Anniston, Alabama