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We are the Palacios family from My name is Stacey and my husband is
Carlos. Our first baby, Philip Cole, was born with full trisomy 13 on March
7, 2007.
 We
found out about Philip's condition via amnio when I was 22 weeks pregnant.
Without hesitation, Carlos and I decided to give our a baby a chance. After
41 weeks pregnant, my doctor decided to induce. I spent two days in labor
before having a cesarean section delivery. Philip Cole was born at 2:07am.
Our whole family gave up sleep for the night to stay in the hospital and
spend time with the baby.
Philip was 21 inches long and weighed 8 pounds 13 ounces. He had a cleft
lip and palette, 6 fingers on each hand and several sores on the back of his
scalp. We never had any tests done, so we do not have any information about
internal abnormalities. His first day was full of good news. He was
breathing on his own and was trying to suck on a bottle.
We had Philip on a feeding tube through his mouth but were hopeful that
he would eventually be feeding from a bottle. We met with a social worker
and representatives from hospice and the children's hospital. Although we
planned on comfort care, the early signs were positive and we assumed we
would be able to take Philip home.
The following day, Philip's temperature dropped after his morning feeding.
We tried warming him up with heat pads, but his breathing was weak and his
temperature did not come back up.
Philip passed at 11:05am on March 8, 2007. We had a service at our church
on March 10th and were overwhelmed with how many people came.
 Although
his life was short, we would never have changed our minds. Philip was the
biggest blessing in our lives. He brought out the best in us and our
families. This website offered us support during my pregnancy and now as
well. We hope our story can do the same for other families. Please feel free
to email us at
staceydalas@yahoo.com
God Bless,
Stacey & Carlos Palacios
staceydalas@yahoo.com
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Translation
Ironman
for Kids - The Living with Trisomy 13 Community thanks Michael
Hennessey for helping to raise awareness for Trisomy 13 and other
related disorders. 
