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LivingWithTrisomy13.org

Ironman for Kids - The Living with Trisomy 13 Community thanks Michael Hennessey for helping to raise awareness for Trisomy 13 and other related disorders. See Video & Details>

In Loving Memory of This Treasured
Trisomy 13 Child

< Memories Page

Noah Arthur Hedlund
May 17, 2006 - Noah was stillborn at 32 weeks
 

 

Bothell, Washington (WA) - Full Trisomy 13

Parents:  Dana & David Hedlund
Big Brother:  Nathan
Child:  Noah Arthur Hedlund
Birthdate: May 17, 2006 - Noah was stillborn at 32 weeks.
Email Address: dlhedlund@comcast.net

We received the news that our unborn son had Trisomy 13 on February 22, 2006 at our 20 week ultrasound.  Our son, who we named Noah Arthur (Noah because it means peaceful and content; Arthur after his Grandfather), blessed us with his presence for the next 12 weeks before passing away on May 17, 2006.  

Our journey during this time with our precious little angel Noah was documented in an online blog ( http://noaharthur.blogspot.com/ ) for our family, friends, and other families experiencing a diagnosis of Trisomy 13 to follow.  We hope that sharing our experience will be helpful to other families.

"An angel in the book of life wrote down our baby's birth, and whispered as she closed the book...'too beautiful for earth'" ~Author Unknown

"Being deeply loved by someone gives you strength; loving someone deeply gives you courage."  ~Lao-Tzu

Please let me know if there is anything else that you need.

Thank you,
Dana

dlhedlund@comcast.net

 

 

 

 

 

 

 

 

submitted: July 2005

 

Click here to download printable LivingWithTrisomy13.org "awareness cards."

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA  92649

info@LivingWithTrisomy13.org

 

 

Text and graphics © LivingWithTrisomy13.org 2005-2007 All information found on this site was submitted to us directly by the families and used on this site with their permission.
Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 

Looking for ALL families who’ve had a trisomy child of any number. Whether you terminated, miscarriage, had a stillbirth, live birth - living or deceased. Including adoptive and Foster parents. Please fill out the TRIS survey  to help update the medical literature and to improve the quality and availability of medical care. Tracking Rare Incidence Syndromes (TRIS)  Click here to add your information

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