Ironman
for Kids - The Living with Trisomy 13 Community thanks Michael
Hennessey for helping to raise awareness for Trisomy 13 and other
related disorders. See Video & Details>
MY NAME IS MAILYN
NIEVE , CHILDS NAME NAYLAH GRANGER, BORN 06-03-06 GOT TO HEAVEN ON 07-29-06,
BROOKLYN, NY . MY E-MAIL
Mailynnieves636@aol.com.
I WAS TOLD MY CHILD HAD TRISOMY 13 AFTER BIRTH...NOW SHE IS GONE AND I MISS HER
SO MUCH, YOUR WEB SITE IS GREAT THANK U!!!!!!!!!!!!!
Have a child living with Trisomy 13? We
would love to add your child to our Album. Click here to send us
their information.
(Please note in the subject area if this is a Trisomy
13 photo as I do not open attachments unless I am aware of the sender.)
Click here to
download printable LivingWithTrisomy13.org "awareness cards."
Living with Trisomy 13 Focused on prayerful support and gifts of love
to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA 92649
If We Hold On Together Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.
Used with permission.
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy
13 child. It is not meant to replace any medical advise of a professional
familiar with your specific condition. The personal journeys of any parents on
this site are only their opinions and their own journey with having a Trisomy 13
child. You should consult with your own physician or other medical professional
regarding the opinions or recommendations expressed within these pages as to
your own child's symptoms and medical condition.
Looking for ALL families who’ve had a trisomy child of any number.
Whether you terminated, miscarriage, had a stillbirth, live birth -
living or deceased. Including adoptive and Foster parents. Please fill
out the
TRIS survey
to help update the medical literature and to improve the quality and
availability of medical care. Tracking Rare
Incidence Syndromes (TRIS)
Click here to add your information
Ironman
for Kids - The Living with Trisomy 13 Community thanks Michael
Hennessey for helping to raise awareness for Trisomy 13 and other
related disorders. 
to help update the medical literature and to improve the quality and
availability of medical care. Tracking Rare
Incidence Syndromes (TRIS)
Translation