Ironman
for Kids - The Living with Trisomy 13 Community thanks Michael
Hennessey for helping to raise awareness for Trisomy 13 and other
related disorders. See Video & Details>
"We had Maya in our
loving arms for four months. We loved her as we love so much and we
miss her every second."
Hi!
I'm Rita, from Baia Mare, Romania, mommy of angel Maya, born on September
14 2007, diagnosed after birth with Trisomy 13 mosaicism. Unfortunately
statistics have beaten us in our fight with life and Maya went to God to be
His angel on January 13 2008.
She hung onto life only for four months.
Maya's appearance was absolutely normal, but the genetic disorder affected her brain so much that she couldn't eat, breathe and suck at once.
Her brain was unable to coordinate more actions at once. Therefore
Maya went into respiratory arrest every time she cried, and needed CPR. And
that happened 15 to 20 times a day. I am a nurse so I could apply CPR every
time she needed it and my husband has learned it.
We had Maya in our loving
arms for four months. We loved her as we love so much and we miss her every
second.
She smiled a lot although she was in pain. Mommy and daddy miss you
very much, angel!
Have a child living with Trisomy 13?? We
would love to add your child to our Album. Click here to send us
their information.
(Please note in the subject area if this is a Trisomy
13 photo as I do not open attachments unless I am aware of the sender.)
Click here to
download printable LivingWithTrisomy13.org "awareness cards."
Living with Trisomy 13 Focused on prayerful support and gifts of love
to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA 92649
If We Hold On Together Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.
Used with permission.
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy
13 child. It is not meant to replace any medical advise of a professional
familiar with your specific condition. The personal journeys of any parents on
this site are only their opinions and their own journey with having a Trisomy 13
child. You should consult with your own physician or other medical professional
regarding the opinions or recommendations expressed within these pages as to
your own child's symptoms and medical condition.
Looking for ALL families who’ve had a trisomy child of any number.
Whether you terminated, miscarriage, had a stillbirth, live birth -
living or deceased. Including adoptive and Foster parents. Please fill
out the
TRIS survey
to help update the medical literature and to improve the quality and
availability of medical care. Tracking Rare
Incidence Syndromes (TRIS)
Click here to add your information
Translation
Ironman
for Kids - The Living with Trisomy 13 Community thanks Michael
Hennessey for helping to raise awareness for Trisomy 13 and other
related disorders. 
I'm Rita, from Baia Mare, Romania, mommy of angel Maya, born on September
14 2007, diagnosed after birth with Trisomy 13 mosaicism. Unfortunately
statistics have beaten us in our fight with life and Maya went to God to be
His angel on January 13 2008. 
to help update the medical literature and to improve the quality and
availability of medical care. Tracking Rare
Incidence Syndromes (TRIS)