Julian Darenger Conway
 

May 3, 2006 - May 3, 2006

Family Update - New Sibling

4-12-08 On June 6, 2007, we welcomed our second son, Jacob Dillon Conway, into the world. He is proof that no prayer goes unanswered. He is perfectly healthy and wild as they come. It is amazing that my two boys celebrate their birthdays a month apart. It has been a hard walk to go on with out Julian here, but now we know that Jacob will always have an angel to look after him. Forever and For Always.

Greenwood, Mississippi (MS)

My husband (24yrs-since Sept. 05) and I (21yrs-till November 05) found out we were pregnant around the middle of October 2005.  Just before Christmas we found out that our little one had a clef lip and a possible heart condition.  We were terrified. Things were not so clear at that point.  

We were then sent to a specialist who could not exactly pin point the problem.  He told us that our son did have a clef lip and possible Dandy-Walker Syndrome.  Once again we were faced with an unclear diagnosis.  The doctor told us we could abort at anytime, but I am highly opposed of going against God's will.  I told myself that if God wanted my little one to come home, He would call for him.  It was not my place to decide if he lived or died.  We then found ourselves with another doctor who was familiar with our Julian's condition.  

He quickly made the discovery that he did have Dandy-Walker Variant (the lesser of the Dandy-Walker Syndromes) and a heart condition called Double Outlet Right Ventricle and Transposition of the Great Arteries.  This made my heart jump up into my throat.  At the time, everything seemed to be evening out b/c our doctor told us not to worry and that surgery could fix the problem.  He told us that he also suspected him to have Trisomy 13 b/c he had what looked like a 6th finger on his left hand, but could only be sure if we did an amniocentesis.  My husband and I said "NO WAY".  He had normal growth and was very active.  We kept a positive attitude the whole time putting our faith completely in God's hands.  
On May 2, 2006, I began to get really weak and was having contractions.  I thought it was false labor b/c he wasn't due until June 30.

I stayed home and laid on the couch hoping to get better and to make the swelling go down.  The next day on the 3rd I still did not feel any better, but was determined to go to work.  I got to work and a friend told me I didn't look very well.  I was still having contractions, but they didn't hurt, so I just shrugged it off.  My friend became more concerned and loaded me up and took me to the hospital.  When I got to the hospital my blood pressure was through the roof.  They quickly admitted me to watch me for an hour to make sure everything was ok.  I felt fine and was laughing with friends, but Julian was wrestles.  They couldn't keep a monitor on him, so I laughed and didn't think anything of it b/c my contractions were not picking up on the monitor.  After about 30 min they realized that my monitor was on incorrectly and my contractions were too close for comfort and I was not dilating.  My local doctor quickly rushed to the hospital and made arrangements for me to be sent by ambulance to a bigger hospital with specialist b/c of Julian's condition.  The hospital was 2 hours away.  When we arrived, we lost Julian's heart beat.  It just quit beating and he was still.  The strangest feeling came over me.  It was as if God touched me and said that it was going to be ok.  I was rushed in for an emergency c-section.  When I woke up an hour later they told me he didn't make it.  I was devastated.  All I could do was tell my husband how sorry I was.  I felt it was my fault.  
 
When everything calmed down at the hospital, they brought me my little one.  I held him and didn't want to let him go, but I knew God had another plan for me.  What broke my heart the most was watching my husband hold him and tell him how much he loved him.  There is not greater love in this world than the love you have for your own child.  It is one of the most amazing feelings I will ever have in my life.  I am grateful God gave me those few months with Julian so close to my heart.  He made me a better person with a greater understanding of life and the things we take for granted.  He will forever be in my heart.  
 
I hope that anyone else who suffers a loss does not find themselves at the end, but I hope they find themselves at the beginning of a beautiful life.  Adrianne Conway  a.conway@pureairco.com


Josh and Adrianne Conway  bailey_butterfly@hotmail.com

Greenwood, MS