| |
|
Family Update |
New Sibling Born!
Annelise Hope Morris ~ She was born on Sept.4,2007 7lbs. 9ozs. Her
big brother Carson watched over her from above. We are very blessed
to have her & enjoying her each and every day.
God Bless,
Jim & Sheila Morris
- - - - -
April 13, 2007
These pictures are from yesterday morning , when my daughter & I
went to put up Carson's cake at the cemetery, and this is what came
out on the camera. I think our little angel Carson was there with
us.
God Bless, Jim
(click to enlarge)
 |
Harrison Township, Michigan (MI) - Full T13
Jim & Sheila Morris providing email
support
jimandsheila320@comcast.net
Carson James born on 4/12/06 at 32 weeks
diagnosed 4/14/06 with Trisomy 13 Full. He was born at 32 weeks 3lbs 6ozs
17 inches long.
4-12-07
We are planning a little birthday celebration for him today, as long as the
weather here cooperates. I've sent you some pictures of some things I have
done for Carson to be placed at the cemetery. The first picture is his
Easter Egg & the second one is a birthday cake , which is 4ft. tall. At
Christmas Carson had a 3ft. Christmas tree placed at the head of his marker
.
A year has gone by so quickly, but our little angel will never be forgotten.
Thanks to you , the people that help with your website, our extended
families around the world & all the little Angels still fighting for a
chance at life , or those that are with our Heavenly Father. Carson came in
to this life to make Sheila & I better Christians. I'm pretty sure our
little boy has changed us , to where we pray in the morning , before meals ,
before we go to sleep & to slow down a bit, to enjoy life & helping others.
Sheila & I went to the treasured memories page the other day , just to
reflect on the past year. We would also like to be a support line through
our e-mail.
We would like to give you a bit of good news , Sheila & I are expecting. She
is 18 weeks as of yesterday, & so far we know we are having a little girl.
Sheila went in for an Amnio a week and a half ago & were still waiting for
the results. My wife & I have been on a rollercoaster ride the past few
years, as this is her third pregnancy. She miscarried in July of 2005 , then
Carson last year. So now we are on pins & needles & taking each day one at a
time, & accept whatever the good Lord gives us. Keep us in your prayers as
we will keep you & all the families in ours.
God Bless,
Jim & Sheila Morris
- - - - -
Carson joined his Heavenly
Father on May 3, 2006
Update submitted by Shawn (Carson’s Aunt)
May 14, 2006
Sheila & Jim are doing OK, but wanted me to take care of the information on
the Treasured Memories page. On May 1st, Carson was stable, but started to
decline quickly on Tuesday May 2nd. Throughout the night Carson had to be
resuscitated several times and Wednesday morning the 3rd was not doing much
better. His lungs were so underdeveloped that the vent had to be turned up,
his heart was enlarged, they think it was due to him trying so hard to
breathe and his color was also changing quickly. Around 2pm I received the
phone call to come to the Hospital and that in all likely hood Sheila & Jim
were going to take Carson off of the ventilator and let him have some peace.
Carson was surrounded by his family on his last day and was held, hugged
and kissed by all of those who loved him most. I finally got to hold my
nephew, what an experience that was. Around 8:30pm the vent was taken out,
Jim was holding Carson (Sheila was afraid that he would struggle to
breathe), but instead of a struggle, as my sister puts it an enormous sense
of peace came over our little hero. Sheila and Jim knew that they had made
the right decision for their son.
 Carson's strong heart continued
to beat for an hour and a half and then he passed on. For myself the life
of this little boy has changed my perspective on just about everything. His
parents and extended family and friends were blessed with 3 weeks with this
amazing little man. He has touched all of us so profoundly and I cannot
imagine not have had him in our lives at all.
Below is a poem written by Michelle Traver,
one of Sheila's best friends and also a lovely story written by Jan Bernot
another close family friend. I hope that these stories lift the hearts of
other Trisomy families who are blessed every day with these amazing babies.
We would also like to thank everyone for their prayers and support of our
family through our journey with Carson James Morris. Most of all Therese,
you are truly an inspiration to us and so many others. May God continue to
bless you and your family.
Shawn (Carson's Auntie)
|
"Heaven Sent"
In loving memory of Carson James Morris
by Michelle Traver
Blowing in like the wind
Of an unexpected storm
Is how I came into this world
The day that I was born
I know the moments in that time
Were frightening and unsure
Then to hear the haunting news
For me there was no cure
Yet despite of all the problems
That my little body had
God knew that you would love me
And would be my Mom and Dad
So he sent this little package
A gift sent from above
And you welcomed me into your life
Watching over me with love
You saw me for who I was
Your handsome little boy
Though our time was short together
I know I filled your heart with joy
Yet my body wasn't strong enough
An early bloom against Springs frost
This fragile flower fighting hard
In the end the battle lost
But in that fleeting moment
God sent his angels down to me
And they took my soul to Heaven
Where forever strong I'll be
And though I don't have answers
To why our time on earth was brief
I hope that you can trust in God
And in Him may find relief
Just know that I will see you again
I forever send my love
And just as you watched over me
I'm watching from above
|
"The Littlest Angel"
by Jan Bernot
In the beginning, God created heaven and
earth, and a place in The Heavens for his special little angels.
The littlest angel spent his days in the sunshine with happiness all around
him. There were no tears and no sadness. Everything was soft, bright and
beautiful.
The special little angels played together and were the most beautiful and
perfect of all God's creations, because they were seen through His eyes.
The littlest angel spent many happy times listening to the other angels.
They would tell about their lives on earth and the things that they had
seen. In time, the littlest angel became troubled and a little sad, because
he had never been born, and had no stories to tell. God had newly created
him, and his soul was brand new.
Each day, when he talked with God, the littlest angel begged to be born so
that he could have a life on earth like the other angels. Each day, God
explained to him that he was not ready to be born yet, that his soul was too
young.
"Please, please," cried the littlest angel, each day for years and years.
Finally, since God loved him so much, he could deny him no longer. He would
allow him to be born, but he couldn't stay on earth too long, because God
had wonderful plans for him in the years to come. God thought for awhile
and chose a mommy and daddy for the littlest angel. They had to love God
enought to trust him and they had to be strong enough to love the littlest
angel and then let him come back to God. So it was...that the littlest
angel was born to earth.
In a short time, he was back in the big, soft hands of God and was so happy
and excited to see all of the other little angels. He had missed them so
much. At last, he had a story to tell too! He told them of his mommy and
his daddy and how he had felt their great love when they held him and spoke
to him. He told them how he had slept most of the time, but he finally had
a mommy and daddy and he knew that they would love him forever and ever.
As he fell asleep that night, safe and warm in God's big hands, he
remembered the most important thing of all....the thing he had forgotten to
tell the other little angels. He had a name! It was a name that his mommy
and daddy had given him! Soon, he was sound asleep and God whispered to
him.. "Goodnight, and Bless you, little Carson."
Dedicated to the Memory of Carson Morris and his Mommy and Daddy who will
love him forever |
 
 4-28-06
Update on Carson.
The vent had to be turned up this week and the doctor said
that his lungs are not getting any better (not because of the trisomy
although). I am not sure if he is going to be one of our miracles, but I
ask everyone to pray a little harder for God to touch his lungs. We need a
miracle. Sheila and Jim are holding up pretty well, I just do not know how
long it will last.
Shawn (Carsons Auntie)
Carson was born 8 weeks premature with his intestines on the outside, cleft
lip & palate, no right eye & left eye still cloudy, his left arm has three
fingers & one thumb, & his right arm has one bone from the elbow up, no hand
& one finger, his skull is protruded out in front & fused together, the
bones in back of the skull are overlapped & on the sides are open, he has no
anal hole. Carson was born on April 12 @ 7:30 pm by C - section. With all of
the problems that were noticeable, the doctors had him transported to
Children’s Hospital. That night Carson had an operation on his intestines &
created a stoma so Carson can have a bowel movement.
My wife & I were on emotional roller coaster that night & still not knowing
what to expect. Thursday I left my wife at the hospital to recover as I went
to Children's Hospital to visit our son in NICU. My body was numb not
knowing what to expect, but as I entered all I saw was my beautiful son.
Carson is on a ventilator & was given four doses of savactin ( if this is
correct) this was to help develop his lungs. I then found out that Carson's
kidney's are large for his age, he may have a heart murmur & that they sent
out for a gene test. Within 24 hours I have spoken to so many caring
doctors, I had to leave to get back to my wife to let her know what was
going on. Friday my wife got out & we went directly down there to see our
son. We then spoke to the doctor caring for our son which is when we found
out about Trisomy 13. She told us that with all of Carson's anomalies &
internal problems that most children with this 50% don't live past a week &
90% don't live past 5 months. But as for now we will take each day one at a
time, because Carson is running the show. This was just devastating to hear,
but my wife & I have a strong faith that the good Lord brought us this
little boy to love & all we could do now is hope & pray for our little guy.
Over the weekend has been rough, Carson is still dependant on the
ventilator. They do a blood gas test on him & it comes back negative, which
means Carson can take in oxygen But can't expel carbon dioxide from his
lungs. When the nurse moves him in a different position & disconnects him
from the ventilator his heart rate goes down. This we were told that if
Carson can't breath on his own & his heart rate drops he won't be able to
make it, but again this leaves us in the most difficult decisions to make.
My wife & I are home now waiting for tomorrow to come & it can't get here
fast enough. We will keep praying & hoping that our son can get through this
one step at a time. He has to parents that Love him already, right now we'll
let GOD carry him when were not there to comfort him. God Bless,
Jim,Sheila,Arielle,
Maraina, & Carson jimandsheila320@comcast.net
Update: June 24, 2006
My husband has started to create this beautiful little garden area for
Carson. I have attached a few pics. It's not done yet but it already looks
so peaceful and beautiful.
 |
|
Ironman
for Kids - The Living with Trisomy 13 Community thanks Michael
Hennessey for helping to raise awareness for Trisomy 13 and other
related disorders. 
