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LivingWithTrisomy13.org

 

Deadline is quickly approaching - 2008 Living with Trisomy 13 SURVEY. Investigating the common T13 experience and helping to update the current literature written on the children diagnosed with Patau Syndrome. If you’d like to participate contact us ASAP. info@livingwithtrisomy13.org

Ways You Can Help
Support & Promote Trisomy 13 Awareness

Thank you for keeping these special children's memory alive and helping parents and infants in need of support.  Your gifts help raise Trisomy 13 awareness and awareness of other rare disorders. May God bless you abundantly for your support with love and prayers.

Are you touched by the stories on this LWT13 site and want to help in some way?

Support this LivingWithTrisomy13.org Web Site

Support other Organizations and Web Sites

The maintenance of this LivingwithTrisomy13.org website (LWT13) has been a gift of love from Apke Web Services  and Natalia's mom, ThereseAnn.  While we are NOT a non-profit organization, your gift of love will help defray the costs of hosting and maintaining this web site.

"In Memory of" - Your gift can be made in memory of a special child, birthday, holiday or special occasion.

"In Memory of" Acknowledgments - An email will also be sent to the honored LWT13 family notifying them of your gift.

via credit card:


(you do not need a paypal account
 to pay by credit card)

Make a Tax-Deductible Online Donation to these organizations that work closely with our LWT13 community. Please let these organizations know that the LWT13 community suggested their non profit organization for your donations.

Ironman for Kids Join us in 2008 as we support Michael Hennessey help raise Trisomy Awareness around the world as he races Ironman events for our children. Donate

SOFT Support Organization for Trisomy is committed to respect a family's personal decision - in alliance with a parent / professional partnership. SOFT has a wonderful fund, “The Joey Watson Fund” which helps trisomy families meet at yearly conventions. Specifically Request your donation be in Memory/Honor of (LWT13 “child” - The Joey Watson Fund). Donate

Hope for Trisomy 13 & 18 mission is to fund research, promote educations, raising awareness and changing lives. Donate

Noah's Never Ending Rainbow mission is to educate, advocate, raise public awareness, promote strategic alliances and assist families who have children with Trisomy and related chromosome disorders. Donate

TRIS Tracking Rare Incidence Syndromes project seeks to increase awareness and knowledge for families and professionals touched by rare trisomy conditions and aims to facilitate improved decision making for optimal services and supports for affected children and their families. Donate


 

THANK YOU!
We thank these families for their gifts to support this LivingWithTrisomy13.org web site

- - - 2008  
Ronald Webster In memory of Luke Price, son of Paul and Becky Price.
Steve Bufton In memory of Jack William Bufton
Cornelia McIntosh in memory of Daniel Sheffield
Melissa Herrera in memory of Samuel Mabeus
ESU MIAMI & family in memory of Samuel Mabeus
Thor Villani on behalf of Coast Guard ESD Mayport in memory of Samuel Mabeus
Robin Perrone in memory of Luke William Price, the baby son of Becky and Paul Price
Andrew & Rachel Cornelsen for Jonathan & Melissa Neufeld and Baby Noah, due in Feb
- - - 2007  
Susan S. Figlak In memory and honor of Ethan Sydney Ratzow
Steven & Yasuko Harwood In memory of Matthew Steven Harwood
Robert Ascher In memory of Michael Fregara, son of Michael and Laura Fregara
Donald Engel in memory of the LWT13 families
Family & Friends of Rob & Maria Demers in honor of Melina
- - - 2006  
Jim & Sheila Morris in memory of Carson
Rick & Becky Dancho and Friends in memory of Caleb
Larry G Tiedje in memorial of Jonathan David Franca-Koh
- - - 2005  

Sunnie Channel

in memory of the LWT13 families.
Steve & Elisabeth Slotkin in memory of Katie

Click here to download printable LivingWithTrisomy13.org "awareness cards."

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA  92649

info@LivingWithTrisomy13.org

 

 

Text and graphics © LivingWithTrisomy13.org 2005-2007 All information found on this site was submitted to us directly by the families and used on this site with their permission.
Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 

Looking for ALL families who’ve had a trisomy child of any number. Whether you terminated, miscarriage, had a stillbirth, live birth - living or deceased. Including adoptive and Foster parents. Please fill out the TRIS survey  to help update the medical literature and to improve the quality and availability of medical care. Tracking Rare Incidence Syndromes (TRIS)  Click here to add your information

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