Trisomy 13 mosaic 25% - Naples, Florida (FL)

"These children are a blessing from God" ~Cindy Miller

Update May 16, 2008

I just wanted to do an update on Kimmie. Kimmie was on her way to receive an award at her high school and of course we were so proud of her of course.

She is doing great and will be turning 21 in October. This coming year will be her last year of school, that in it's self is scary seeing as we have no program that is offered after graduation. My fingers are crossed and maybe something will come up.

She just became an auntie for the 3rd time on April 2nd (my older daughter had a baby boy, Thelmo John who joins his sister Skyla and Kimmie's other nephew baby Gregory) This makes her very happy she just loves babies and she is so proud of "her babies".

We count every day we get to share with her a blessing and still sometimes take one day at a time. God bless all the families here and I even though I may not respond to all the emails I do read each & everyone of them.

Cindy & Tommy Miller Kimmie's proud parents.
cmiller0429@aol.com 

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February 13, 2007

My name is Cindy Miller my husband Tom & I are the very proud parents of Kimberly Adrienne. Kimmie as we all call her was born on October 14 1987 and wasn't diagnosed until she was 7 1/2 weeks with Trisomy 13 mosaic 25%.

Having very little information on Trisomy 13, let alone the mosaicism our family took everything one day at a time.

Though the doctors weren't optimistic about her future we knew we would never give up. Kimmie was the youngest of our 3 children and the star of the family.

Kimmie now is 19 years old and though she has limited speech lets us know what she wants seeing as she understands everything LOL . She loves going to school and hanging with her family. Kimmie did have a tracheotomy in 1997 due to severe sleep apnea but other than that she is in pretty good health.

I would love to hear from other parents. These children are a blessing from God and it would be nice to hear from other families.

I have enclosed a few pictures of Kimmie. One of them is her helping her daddy to cook something she LOVES to do .

Thank you
Cindy Miller cmiller0429@aol.com