Trisomy 13 mosaic 25% - Naples, Florida (FL)

"These children are a blessing from God" ~Cindy Miller

October 14, 2009

Just thought I'd update Kimmie's album.

Kimmie just turned 22 years old today!! Wow can't believe it. Thinking back when she was 1st born and all the doctors were so negative, well I guess she showed them!! Kimmie is doing well and is still in school until this December after that well we have no programs here in FL that we can send her to but like everything we'll cross that bridge in December.

Kimmie has had no health issues and is doing well. The only time she gets a bit stuffy is when we go back to MA to visit our family. She has decided that she loves country music having now a very large collection of CD's.

She loves to get on my Facebook page (though she has her own) and comment on everyone's pictures and seeing as she can't spell I have to put a note up saying that Kimmie was checking up on everyone! We continue to be amazed at how Kimmie loves and is loved how she is the one that is most accepting of others. We have suffered 2 great losses one a year ago and the other a month and she is the one who tells us not to be sad that they are in Heaven watching over us and are fine and we are the ones that are sad. She is so wise. She is here to show us the way.

I would be happy to talk to anyone.
I have attached a few pictures on her graduation day with her brother, sister,in-laws & niece & nephews.

Proud mommy & daddy of our Princess Kimmie Buttons (that was the name her auntie Ursula gave her at birth and still uses)

Cindy & Tom Miller
cmiller0429@aol.com

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5-13-09

Hello it has been awhile since I last updated Kimmie's album. She is doing very well and is getting ready to graduate high school on the 29th. That to me is so unbelievable and very scary as we don't have a program for her to go to when she is completely out in December. And of course seeing as she has been in school since she was 3 years old I wonder what she will think and that makes me very sad. But we'll cross that bridge when we get to it I guess.

On a lighter note she did attend her senior prom and her date was none other that her daddy !!! She was so excited and loved that fact that daddy took her he even dragged her on to the dance floor a couple of times LOL !! She looked like the princess I think she is so beautiful and so grown up. Something I never thought we'd see. She will be turning 22 in October (I can't believe that).

I am attaching a few current pictures to share with all the wonderful families here. I read every email and follow every milestone and heart break we are I think in a unique club, one that we never thought we would be in but love what we have !!

Kimmie (the grads) very proud mommy & daddy
Cindy & Tommy Miller
cmiller0429@aol.com

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Update May 16, 2008

I just wanted to do an update on Kimmie. Kimmie was on her way to receive an award at her high school and of course we were so proud of her of course.

She is doing great and will be turning 21 in October. This coming year will be her last year of school, that in it's self is scary seeing as we have no program that is offered after graduation. My fingers are crossed and maybe something will come up.

She just became an auntie for the 3rd time on April 2nd (my older daughter had a baby boy, Thelmo John who joins his sister Skyla and Kimmie's other nephew baby Gregory) This makes her very happy she just loves babies and she is so proud of "her babies".

We count every day we get to share with her a blessing and still sometimes take one day at a time. God bless all the families here and I even though I may not respond to all the emails I do read each & everyone of them.

Cindy & Tommy Miller Kimmie's proud parents.
cmiller0429@aol.com 

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February 13, 2007

My name is Cindy Miller my husband Tom & I are the very proud parents of Kimberly Adrienne. Kimmie as we all call her was born on October 14 1987 and wasn't diagnosed until she was 7 1/2 weeks with Trisomy 13 mosaic 25%.

Having very little information on Trisomy 13, let alone the mosaicism our family took everything one day at a time.

Though the doctors weren't optimistic about her future we knew we would never give up. Kimmie was the youngest of our 3 children and the star of the family.

Kimmie now is 19 years old and though she has limited speech lets us know what she wants seeing as she understands everything LOL . She loves going to school and hanging with her family. Kimmie did have a tracheotomy in 1997 due to severe sleep apnea but other than that she is in pretty good health.

I would love to hear from other parents. These children are a blessing from God and it would be nice to hear from other families.

I have enclosed a few pictures of Kimmie. One of them is her helping her daddy to cook something she LOVES to do .

Thank you
Cindy Miller cmiller0429@aol.com