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  Samuel weighed 4lbs 7 1/2 oz when he was born
Mosaic Trisomy 13. He sat up at 18 months, crawled at 2 1/2 years, and
started walking independently at age 4 1/2. He smiles continuously, loves to
dance, watch TV and wrestle with his 2 older brothers. He attends Milan
Elementary School, where he receives PT, OT & Speech. Samuel does not talk,
but communicates by taking us by the hand and leading us to what he wants.
He is pure joy!!!!!! Mom & Dad--Tim & Anne Jackson,
Brothers--Luke & Noah - Milan, Tennessee
Update: 2-06
Here are a few pictures of Samuel and his new
Canine Companion---Roeber. They make a great team!! Go to
www.cci.org
if anyone is interested in getting a skilled companion dog for your child.
 
Update:
2-10-05
Samuel fell down stairs (15 of them) last Saturday. He broke his R arm and
collar bone. When we were at the ER for his arm, they also tested him for
RSV and it was positive! We ended up having to rush him to the hospital on
Sunday because he was having such a hard time breathing--his arm was hurting
too much to cough. Anyway, we spent 3 days at LeBonheur Children's hospital
in Memphis, TN which is one of the largest children's hospitals in our
region. Please pray for Samuel, he has to wear a splint for 4-5 weeks.
Anne Jackson
April 2005 - Here are some more pictures of
Samuel. He fell asleep with his brother Noah in the bathtub and with his
brother Luke in the chair. He can fall asleep anywhere!! This past weekend I
made a cake. While I was waiting for the oven to preheat, Samuel helped
himself to some batter!!
 
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Ironman
for Kids - The Living with Trisomy 13 Community thanks Michael
Hennessey for helping to raise awareness for Trisomy 13 and other
related disorders. 
to help update the medical literature and to improve the quality and
availability of medical care. Tracking Rare
Incidence Syndromes (TRIS)
Translation