Update 1-30-08

I am asking for prayers. Arianna was admitted to the hospital on monday, she has RSV and pneumonia. She has been up and down for the past three days, please see her blog for all the details, http://ariannajoliesnell.blogspot.com.

Thank you for your love and support.
The Snell Family
 

Update 1-4-07
I just wanted to update you on her cranial stenosis surgery.  All went well, she is a fighter.  She pulled out her ET tube when she returned to the PICU after her 6 hours in surgery.  She is a tough little angel.  She is looking good and the doctors are very pleased with everything.  I will send new pictures when we get them.  Thanks to all of you that had her in your thoughts and prayers.
Julianna

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Hi my name is Julianna Snell, I am the mother of Arianna Jolie Snell, born June 19, 2006 ( same day as mommy's birthday).  

We did not know anything was wrong until she was born. She was full term at 39 weeks, weighing 6 lbs 2oz.  It was a quick delivery, from the time my water broke to her birth was just under 2 hours.  She was rushed from the L&D room to the nursery to assist her breathing. The doctor on call knew she would need more help then they could provide so the called in medical transport and she was taken to Primary Children’s Hospital 4 hours after birth.

Three days later we were told she had Trisomy 13, we were given only a few days to be with her.  After 12 days she was sent home, the doctors told us to take her home to enjoy what time we had left with her.  She has thrived at home and was taken of Hospice care at 12 weeks.

She is now six months old and doing great. She eats from a bottle and sometimes nurses. She has done so much they told us she wouldn't.  We are scheduled for cranial stenosis repair on Jan 3rd.  We have great faith that she will do well.  We also hope it will put an end to her seizures.

Your prayers are appreciated at this time.

Thanks
Julianna

Matthew & Julianna Snell m_jsnell@msn.com