 Jack
has Full Trisomy 13, his birth weight was 5lb 6oz, he now weighs 25lbs. He
loves lots of kisses and cuddles, he has just started to hold up his head,
he can roll from side to side, on to his belly and lift his head. He
also laughs a lot, makes lots of noise like he's having a conversation with
you. He gets fed through a G-Tube which is a lot easier than the NG-Tube. He
will be starting nursery sometime in Feb, I can't wait I never thought I
would ever see the day my son would be going to nursery it's great. Parents:
Donna & Jason Charnley. We live in a place called Allanton, near Glasgow, in
Scotland, UK |
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Ironman
for Kids - The Living with Trisomy 13 Community thanks Michael
Hennessey for helping to raise awareness for Trisomy 13 and other
related disorders. 
to help update the medical literature and to improve the quality and
availability of medical care. Tracking Rare
Incidence Syndromes (TRIS)
Translation