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Trisomy 13 - Patau Snydrome - Photos, Support and Resources

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Living with Trisomy 13 - Patau's Syndrome

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Jacob Anthony Haynes

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Born: May 3, 2000 

  Milton Keynes, England - Full Trisomy 13

Hi. My little angel's name is Jacob Anthony Haynes. He has full T13. Jacob is at school full time. Sits unaided if a bit wobbly. Always smiles. Loves noisy toys and bright flashy lights. He seems to be trying to talk and copies mouth movements. He makes me smile every day. We live in Milton Keynes, England

Update 12-3-06
Jacob is doing really well. Developing lots of new skills and improving on his old ones. He crawls well now and uses his legs to help push up when you pick him up (which is helpful because he is heavy!).

Gary Haynes father to Jacob A Haynes

Update: April 24, 2006
Hi There!
We are just about to go to the Philippines for a month to visit my wife's family. I will try to update things a bit when we get back. As a quick note Jacob is doing very well. He is crawling and kneeling up to get at things!!  He has a wicked sense of humor and loves to pull his mums hair or grab my glasses when ever he gets the chance.
Chat again soon,
Gary Haynes

 

Gary Haynes garyhaynes1961@talktalk.net submitted: 1-16-05

 

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Living with Trisomy 13
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All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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