| |
Update: 6-26-08 Aaliyah graduated from Inspire
preschool on June 20th 2008. We were so proud of her, she climbed the stairs
to go on stage with one of the teachers holding her hand. She sang and
stomped her feet on cue to the songs that they sang. She had a blast at the
graduation ceremony. The teachers and her aide cried because she's moving on
to another school starting in September. Developmentally Aaliyah is coming
along, she's more vocal and says a few more words, such as hi mama, hello,
what's up, outside and bye-bye. She's also following instructions better,
most of the time she'll come when you call her (when she doesn't come it
because she's doing something she's not supposed to), if you give her
something to give to someone she'll give it to them. She sings the alphabet
song if you sing with her. She's also moved on to a new big girl's room, we
took the crib away about one month ago, she's still adjusting to sleeping on
a twin bed by herself, we have the safety guard to prevent her from falling
off, we also have a safety gate to prevent her from walking out of her room.
She's walking for longer periods of time and has started to run, she loves
it when anyone chases her, it's so cute. She's going to be 5 on July 18th,
we plan on taking her to Sesame Place to see her all time favorite
character…Elmo, this is going to be the first time we go on a long car trip
with her and stay at a hotel. Aaliyah is very healthy (thank God), she
continues to learn and grow everyday. She's the love of our life. Update: July 17, 2007 I can't believe it, but she'll be
4 years old tomorrow. We've come along way from when she was first
diagnosed. I found myself looking at her as she slept last night and I
thought about all the changes this little person has brought to our lives.
She's such a loving person, she has the purest soul I have ever known. She's
now officially a walker, she walks most times when she wants to get
somewhere, unless she's in a hurry at which point she'll crawl. I went to
the mall with her on Saturday and she walked for the most part. She's more
independent, she tries to feed herself more. She hates wearing diapers, she
pulls them off every chance she gets, so we always have to keep pants on
her. She's also talking more, she repeats a lot of what we say. She's very
social and affectionate, she's also very strong willed.
Thanks so much for this site.
Natalie Raphael-Alisca
Ra_equity@yahoo.com
- - - - My daughter's name is Aaliyah (pronounced
A-Leah), she is full T13 (the Geneticist suspects mosaicism but we won't
allow the necessary test to confirm) She is healthy, she's only had two
surgeries, one to insert tubes in her ears and the other was to remove the
extra digits that she was born with. She has coloboma in both eyes but she
appears to have good vision. She was born three weeks early and weighed 4lbs
12oz 171/2", she now weighs 16lbs 8ozs 32". She's babbling saying da-da,
ba-ba, ma-ma, she also says up. She's been doing the combat crawl since she
was 12 months old. She's not able to sit unsupported for long periods of
time (she'll fall over after about 1-2 minutes). She plays with her toys,
her main means of transportation is rolling. She loves to kiss and is always
smiling. She holds her own bottle and can eat pureed foods, she's now
learning how to chew. Washingtonville, New York
 Update 1-25-07
Medically Aaliyah has been very healthy. She had a new set of tubes
put in the early part of 2006. She recently went to the doctor with a
stomach virus and the doctor commented that because of Aaliyah he now
believes in miracles. The only issue that we have with Aaliyah is that she
keeps a cold during the winter months.
Developmentally
She started a special needs preschool this past September. She recently
began taking a few steps (5-6) unsupported, she's also talking more,
whenever someone knocks I say who is it, she replies who's it. She says
that's not nice, after I say it when she does something wrong, I don't think
she understands the meaning because she continues doing what it is I don't
want her to do. She's very intelligent, whenever we put an obstacle in front
of her she figures out a way around it, for example she has a habit of
turning off the TV or changing the channel by pressing the buttons in front
of the TV, her father cut out a plastic top and taped it to the TV, she
figured out how to put her little hands underneath the plastic to reach the
buttons. She also has a habit of playing with her spit, she knows that I
don't like that and that I tap the back of her hands whenever she does this.
She'll play with her spit until she sees me coming at which time she'll
either start to clap or she'll throw me a kiss. She loves watching Elmo and
no matter where she's at in the house if she hears the Elmo song she crawls
very fast to the TV. She won't play with any dolls except for the Elmo doll
that she got for Christmas. Her teacher says she's a big help in school, she
loves to turn the pages of the book during circle time. She loves music and
can hum the Ring around the rosie song as well as Jingle Bell.
I'll send her latest picture soon. - - - Update 4-24-06
Aaliyah is doing very well. Her development is as follows: Physical: She
sits up totally unsupported (accomplished at 19 months) She pulls herself up
to stand (accomplished at 22 months) She crawls on all fours (accomplished
at 24 months)
Walks holding on, as well as when you hold her hands (last 4 months)
Socially: she's learning to talk, she says hi dad, hi Linda (her P/T's
name), she says all done and hello. She's also learning to feed herself,
she's learning to drink from a regular cup. She follows simple directions:
come here, sit down, stop and give kiss. She's very social. She's starting
the preschool program in Sept. |
|
SOFT
Translation