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Living with Trisomy 13 - Patau's Syndrome

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Farida Nour

Click here to send an update or photos

Born: January 1, 2005 

  Helwan, Cairo - EGYPT

Update: February 27, 2006

Farida is now one year, 2 month .....she is doing well....She had surgery on her left eye a month ago, She was in the hospital in Intensive care for 10  days with a lung problem....but she is doing well now...and she back as
before ....we decide to do the another eye within one month then we will start do the surgery for her bones....asking God to accept our suffering with her....she is our angel.....and she has a very sweet smile.....I'll send u very soon a new video ....and new photos.

Best Regards,
Mohamed

Update: July 2005
Farida is doing well now in the last 2 months .... it was a hard time when we faced the "chickenpox" problem with her, but thank god we have a strong baby and also she helps us to be more strong.

But we still have no solution for her eye.......she is blind...you don't know how hard is that for us !!!!!!!!!!!

She just turned seven months old and she is now starting to eat normal food but with special instruction from her doctor.

Video Gallery Click here to view a VIDEO of Farida

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April 2005:
Hello, we are the parents (Mohamed Nour and Sameh) of a girl with Full trisomy 13 that is called Farida . Farida was born on 1/1/2005 ( 00:30 am ). Ita is 4 month old. She weighed 2 kilos 200 grms on the first day - Now she is 4 Kilos 200 grms ( 23/4/05 ). During the pregnancy we didn't face a problem. She does not see (blind ), but looks toward the sun and the light of lamps.  She hear us very well.  She has problems with swallowing. She has one extra finger in the two hands and legs.  She cries when she wants to eat. We, together with her 4-year-old brother Omar, are very proud of her.

We are trusting God that she will continue on this path. Thank you for all of your prayers

Below see the genetic karyotyping examination  done on feb.2005

Here she is 1 hour after delivery  

 
 



genetic karyotyping examination showing trisomy 13
 

 

Mohamed Nour  Click here to E-Mail  submitted: 4-26-05

 

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Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
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Text and graphics © LivingWithTrisomy13.org 2005-2007 All information found on this site was submitted to us directly by the families and used on this site with their permission.
Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 

Looking for ALL families who’ve had a trisomy child of any number. Whether you terminated, miscarriage, had a stillbirth, live birth - living or deceased. Including adoptive and Foster parents. Please fill out the TRIS survey  to help update the medical literature and to improve the quality and availability of medical care. Tracking Rare Incidence Syndromes (TRIS)  Click here to add your information

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