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LivingWithTrisomy13.org

Ironman for Kids - The Living with Trisomy 13 Community thanks Michael Hennessey for helping to raise awareness for Trisomy 13 and other related disorders. See Video & Details>

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Living with Trisomy 13 - Patau's Syndrome

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Andrew Zarifeh

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Born: January 4, 1984 

 


Andrew (trisomy 13 mosaic) with his brother Ramsey in 2003

 
Orpington, Kent, ENGLAND - trisomy 13,: mosaic. one cell line trisomy 13, one turners syndrome

Andrew is now 21 and although autistic with severe learning difficulties and many physical problems is generally a very happy young man. He loves walking in the countryside and swimming. He lives in a residential home with three other young autistic males but sees his parents every weekend. He is well liked in his house as although it takes him some time to get to know people, once he knows and trusts them, he is very loving. He is non aggressive towards others but will try and bang his head when he is in pain. Orpington, Kent, ENGLAND

 
 


Andrew with Mum & Dad on his 21st Birthday! January 4, 2005


with brother Alex and his girlfriend Natalie


Andrew and Alex
 

 

Jackie Zarifeh Click here to E-Mail  submitted: 4-10-54

 

Have a child living with Trisomy 13?  We would love to add your child to our Album.
Click here to send us their information. (Please note in the subject area if this is a Trisomy 13 photo as I do not open attachments unless I am aware of the sender.)
 
 


 
 

Click here to download printable LivingWithTrisomy13.org "awareness cards."

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA  92649

info@LivingWithTrisomy13.org

 

 

Text and graphics © LivingWithTrisomy13.org 2005-2007 All information found on this site was submitted to us directly by the families and used on this site with their permission.
Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 

Looking for ALL families who’ve had a trisomy child of any number. Whether you terminated, miscarriage, had a stillbirth, live birth - living or deceased. Including adoptive and Foster parents. Please fill out the TRIS survey  to help update the medical literature and to improve the quality and availability of medical care. Tracking Rare Incidence Syndromes (TRIS)  Click here to add your information

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