Update May 2005
My baby girl has been hospitalized for a little over a month now and is still fighting strong.  The healthy heart that was thought she had is not so healthy after all.  Turns out she has a very large VSD, ASD, PDA and Pulmonary Hypertension.  Her heart takes up half her chest from how enlarged it is, but it still beats strong.  She's a little angel with a big heart.

She was home with me for 2 1/2 months very stable no need for supplemental oxygen and was doing so well.  Unfortunately, from one day to the next she began to have many apneic episodes coupled with seizures (up to 8 a day).  Through all that she has been, pulling through.  The doctors themselves are astonished at how strong she is.  From the beginning I had chosen not to do any surgeries and that I would have her live as comfortably as she possibly could.  I left her life up to her and she would go when she was ready and tired.  I believe that she came to this world for a reason.  All these beautiful children were sent to us, not to learn, but to teach.  I find my life so fulfilled and I am eternally grateful to her for changing my life and making me stronger than ever.  No matter how little time I have with her or how heartbroken I will be when she passes, I will never regret the choice I made to keep her, despite the doctors urging me not to.  I also believe that she is so strong because of the power of prayer and faith, so I ask all to please pray for my little girl, not for better health, but for strength and comfort as she completes her mission in life.  I also ask to please pray for my strength to endure what I have been chosen to endure. As I too will pray for yours.  Thank you soo much, this site has been an inspiration and it is because of all of you that I have felt so much comfort. 

These pics are of my babe at 1 1/2 month and 21/2 months.   Always, Yasmin