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"On our Prenatal hospital tour, We were
told our child would never leave the NICU... NOW SHE DANCES!" ~ Kristin Ward |
Update:
August
3, 2007
I just realized that I have not done an update on Hannah in a year and a
half and yet so much has happened in that time.
Hannah is now 6 years old and is just doing wonderfully! She just finished
up her kindergarten year in a normal classroom setting and is really looking
forward to starting first grade in the Fall. She is very excited about going
to school “all day” and showing her little brother, who is entering
kindergarten, “the ropes”.
Her kindergarten year went really well. She is now reading at a First Grade
level and really loves to read. She spends about an hour each and every
night reading all of her books in her bed before going to sleep. She tells
me all the time how smart she is for being able to read.
Her writing is her difficult area, as she tends to see things backwards and
tends to write some letters and even words backwards. She also has a bit of
trouble with cross body movements and is working on those issues in her
occupational therapy. In the year or so that she has been working with her
therapist, I have seen amazing changes and I think she will conquer those
issues real soon. Being left handed certainly doesn’t help matters!
Besides school, Hannah is also a very busy girl. She just finished up her
second year of dance lessons where she took ballet, tap and jazz and had her
recital this past Saturday. She did an amazing job and loves to be up on the
stage. We are so proud of her.
She
also kept busy all year with art classes, religious education classes, and
is currently taking swimming lessons and is in rock star camp. She and 8
others wrote, sang and recorded their very own song and it was really good!
She will take an eco-art class in July and spends the rest of her time using
her very vivid imagination.
Hannah is just a delight to be around and all of her teachers just love her.
They all tell me that she has a great balance of being a leader and a
follower with her friends and she really doesn’t let too many things bother
her, which is great. I am so proud of my sweet girl.
Oh, and she is really excited about being a big sister again in October. She
really wanted to have a sister but is now okay with having three brothers.
Daddy says that she is our miracle girl and that God only gave us one girl
because she is so special. She loves that answer, of course, because she is
indeed Daddy’s Little Girl.
Hope everyone has a great summer…I will update again when school starts in
the Fall.
Kristin

- - -
Update December 2005 Hannah turned 5 on Sept. 29th and is doing very well! She loves her pre-k
class, and I couldn't be happier with her teachers and the kids in her
class. Her teachers just absolutely love every one of the kids in there, you
can tell, and they tell me over and over what a joy it is to have her in
their class. I actually was early to pick her up one day and overheard her
teacher telling another teacher how much she loves Hannah's laugh and how
much fun she is in school because she is just so excited about learning. Now
the teacher had no idea that I was there so this was just off the
cuff...really nice to hear.
Hannah went for an OT and PT evaluation a few weeks ago since we have moved
to Ohio and have to get her into new programs. She actually has caught up to
her delay in OT, and no therapy was recommended in this area. I was really
happy to hear that because I know she has worked very hard on it. She had a
1 year delay in April of 2005 and has since made up a year. Her PT
evaluation was good too but she needs some help in the balance area. It's
strange...she is left handed and left should be her dominant side but she
could do a lot more on her right (ie. standing on one foot, hopping) than on
her left. She also has a big balance issue. They recommended her not for
one-on-one therapy but to be part of a "class" of kids all around the same
developmental level. I think that would be better for her so she doesn't
think she is being singled out. It starts after the new year so we will see
how it goes.
Hannah's two brothers are doing well too. The 3 year old, Brennan, is in
preschool too and doing fine with the exception of a few time outs for
"interrupting" and Declan is 6 months old and such an angel. Hannah is
really good with both of them.
Thanks,
Kristin Ward kstinw1970@yahoo.com mom of Hannah - 5 t13 mosaic

Update: October 2005 Hannah was diagnosed with t13 mosaic in utero, and we were given a very
grim prognosis for her future. We were told that she wouldn't survive past
one week if she was alive at her birth. Well, she is now 5 years old and is
very much alive and thriving! She had an ASD, PFO, and PDA at birth which
all closed by the age of 3. Other than that, she has had absolutely no other
medical problems. She is extremely smart cognitively, and is both sweet and
stubborn all at the same time. She is slightly behind in her fine and gross
motor skills but early intervention teams determined that she is still
within the normal range, so she does not have any therapy at this time. Hannah just turned 5 years old last week and is doing great. She goes to
pre-K three days a week now and is really keeping up with the other kids.
She still has a bit of trouble with her fine motor skills i.e. writing and
cutting with scissors, but she has been thrown a double wrench there because
she is also left-handed. So it will take time but I am hoping that this
extra year of pre-k will help her out.
Cognitively Hannah is super smart. She never forgets anything you tell her
and she uses the biggest words she can, and usually uses them correctly. Her
favorite word right now is Aactually@. She always says to me, A Well,
actually Mom, I can do that.@ Too funny! She is also reading bit and is
getting very good at sounding things out. She amazes us with some of the
things that come out of her mouth - she is a trip!
Hannah is also excited about our recent move to Ohio. We now live near one
set of grandparents and she is happy about that. She also loves her new
house and new neighborhood.
She also loves her new little brother, Declan, who was born on May 31st. Now
she can boss him around, along with her other brother, Brennan, age 3. All
in all, she is doing fantastic.
Mother: Kristin Ward, Ellicott City, Maryland
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