Trisomy 13 mosaic, what a precious miracle. Born at
1lb., Logan just had a nissenfudoplication repaired. Logan will be going
into preschool through the IU. He is becoming very mobile on his own with
his new wheelchair. Logan is very social and engaging, he is loved by all
that comes into contact with him. Hershey, Pennsylvania
Update 9-24-05:
Logan is doing well with his walker and he is sitting up, sits on his knees
or legs bent, and pulling himself up on the tv.
He has a new walker that has hip pads that are covered in the same material
as his wheelchair sides. I put him on a time out for kicking the tv last
week. I made him sit on the cat condo which is perfect height for him and
the walker is in front of him that he holds on to. He was SOOO mad at me
that he started biting the hip pads. So I thought I will show you! I smeared
baby food all over the hip pads and he stopped biting it, he was too busy
trying to wipe off the peas I put on it. Well his new walker went to school
with him this week and I got a phone call from Lori on Tuesday, guess who
walked by himself with the help of his new walker!!!! You got it he was
walking down the hall by himself all proud like he should be.
 So this morning he wouldn't stop licking and mouthing his one toy. I got
sweet pot. baby food and smeared it like before BUT this time he loved the
baby food and licked it clean!!!!! Lori (his nurse) and I sat in shock! This
is the 1st time in over 2yrs that he allowed any type of food in his mouth
with out gagging to the point of getting sick. So I guess while I thought I
would teach him he taught me to be creative in trying to get him to eat.
Tina
Update 2-15-02
Logan started his 2nd week of preschool. Logan since starting school has
begun pulling himself up on toys to a kneeling position, pulled himself up
to a sitting position using his hands for balance, waved bye bye after
hearing the word, he is now imitating noises from Bear in the big blue house
show, and crawled 4 inches by himself! I am so proud of my big boy! Tina
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Ironman
for Kids - The Living with Trisomy 13 Community thanks Michael
Hennessey for helping to raise awareness for Trisomy 13 and other
related disorders. 
to help update the medical literature and to improve the quality and
availability of medical care. Tracking Rare
Incidence Syndromes (TRIS)
Translation