 Update
5-20-10
Logan is severly autistic but is very stable with his medication. He has
stopped doing self injury behavior which was hitting his head and
face. Before Logan was medicated he slept 3 hours a day the rest of the
time he screamed cried and hit himself. Nurses were leaving in tears
and refused to come back. So I had to quit my job to get him the
medical attention he needed. He recently got the correct RX for his
glasses and they are only 20% strength so it doesn;'t give me
a headache. He also just got his hearing aides which has been a GOD
SEND. He now mimicks certain things that we do his words he knows
are so much more clear.
Logan still doesn't walk without assistance or his walker. But
he just needs to get a bit more brave to stand on his own.
We play the balance game where we count to 3 and let go. We are
spending much more time outside visiting neighbors and meeting them.
Logan is in an Autistic Support Classroom. With the help of his hearing
aides he can now focus on his teachers much better. However Logan is
very bullheaded strong willed and a mind of his own so he doesn't always
cooperate his teachers or therapist. He tells them bye bye when he is
done listening and cooperating. We also found out that Logan's pancreasis
forgive the spelling is not producing an enzyme which was preventing him
from gaining weight he used to look like he survived the Holocost.
Thank God for his new GI Dr. so now he eats 6 times a day by mouth - baby
food and takes the enzymes each time he eats. He is almost 50lbs now
which is heavy for me to lift. His father is still not involved he hasn't
seen Logan in 3 years. This a tough road for two parents however being a
single mom is so tough without support.
Tina
 
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U pdate
8-30-08
Logan is now in school. He can pick his picture out when offered two people.
He is learning his letters, colors, and numbers, Logan receive a home health
aide or a nurse at school along with a TSS worker and BSC.
Logan was recently diagnosed as severely Autistic. We had a rough 2 years
of Logan only sleeping 3 hours a day. With the help of a God send
Neurologist Logan is now on medication to help in all areas.
He is a joy and pleasure to be around now. Logan's left leg is one inch
longer than the right. We just got him a shoe lift. I am waiting for his new
reverse K walker and a weighted vest. I fully expect Logan to really making
big progress with his walker.
At school the only time he uses the wheelchair is for going a long
distance such as recess, and transportation. Other wise he sits in his
regular school chairs or stands. Logan's new enclosed canopy bed next
Monday. Logan will be receiving music therapy and vision therapy at school
this year. I am moving next weekend the address is 30 Bower St Montgomery,
PA 17752 I am not sure what the phone number will be, On a side note I had
to quit my job in order to take care of Logan. So we are going into low
income housing and while Logan is at school I will get a part time job to
help financially. I am really worried about being able to provide a good
Christmas this year for Logan. Tina
- - -
 Trisomy 13 mosaic, what a precious miracle. Born at
1lb., Logan just had a nissenfudoplication repaired. Logan will be going
into preschool through the IU. He is becoming very mobile on his own with
his new wheelchair. Logan is very social and engaging, he is loved by all
that comes into contact with him. Hershey, Pennsylvania
Update 9-24-05:
Logan is doing well with his walker and he is sitting up, sits on his knees
or legs bent, and pulling himself up on the tv.
He has a new walker that has hip pads that are covered in the same material
as his wheelchair sides. I put him on a time out for kicking the tv last
week. I made him sit on the cat condo which is perfect height for him and
the walker is in front of him that he holds on to. He was SOOO mad at me
that he started biting the hip pads. So I thought I will show you! I smeared
baby food all over the hip pads and he stopped biting it, he was too busy
trying to wipe off the peas I put on it. Well his new walker went to school
with him this week and I got a phone call from Lori on Tuesday, guess who
walked by himself with the help of his new walker!!!! You got it he was
walking down the hall by himself all proud like he should be.
 So this morning he wouldn't stop licking and mouthing his one toy. I got
sweet pot. baby food and smeared it like before BUT this time he loved the
baby food and licked it clean!!!!! Lori (his nurse) and I sat in shock! This
is the 1st time in over 2yrs that he allowed any type of food in his mouth
with out gagging to the point of getting sick. So I guess while I thought I
would teach him he taught me to be creative in trying to get him to eat.
Tina
Update 2-15-02
Logan started his 2nd week of preschool. Logan since starting school has
begun pulling himself up on toys to a kneeling position, pulled himself up
to a sitting position using his hands for balance, waved bye bye after
hearing the word, he is now imitating noises from Bear in the big blue house
show, and crawled 4 inches by himself! I am so proud of my big boy! Tina
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