Aide Gonzalez is available to provide immediate phone support (559) 936-4536 ahideg76@yahoo.com
(she also speaks Spanish)

10-11-06
Thank you all for your support. Needless to say, our family is going through a difficult time, despite knowing that our little angel is now cured. Not having him around is more difficult than those sleepless nights when he was not feeling well.
 
We're very fortunate to enjoy him these magical days. He did not have very many health issues, and we know God gave us an opportunity to spend quality time with him.

Thank you all for your support. Some of you have gone through what we are going through so you understand the pain, despite knowing that our little angels are better off in heaven.
 
Though we think the procedure did precipitate his passing, we do not blame anyone. God felt it was unnecessary for Sebastian to go through any surgeries and decided to take him before anything happened. However, we'd like to encourage any of you who are having second thoughts about a particular procedure, to just place your child onto God's hands and he will help you decide. We believe blindly in God's plan for each and everyone of us.
 
Thank you all for your prayers. We do believe that the most valuable medicine anyone's given us in and outside of the medical community has been prayer. Many of Sebastian's nurses came up to us to let us know they were praying for our family. Many of them also told us Sebastian had touched their lives. It is very rewarding to hear that your tiny, ill child has touched someone else's lives.
 
Hugs from our family to all you who are still fighting to help you child thrive. Don't give up.
 
Aide and Jesus Gonzalez, parents of Sebastian 8/15/06 to 10/10/06

Update 10-10-06
On Behalf of all our families, we'd like to thank each and every one of you who were kind to give us insight as we posted our concerns on this board.

Our baby angel, Sebastian, passed away this morning, peacefully unto the arms of his creator. We had him for 56 magical days and enjoyed every minute of his stay. We feel fortunate that God chose our home to host one of his most treasured angels. He will forever be our baby.

Sebastian was awaiting several tests to be done to determine if he would benefit from surgery. I know God did not want me to fix what was so perfect, and I don't feel remorseful or bitter. Sebastian passed away because he wanted to return to his true home.

Once again, I thank you all.
Sincerely,

Jesus and Aide Gonzalez, Sebastian's mommy and daddy

10-6-06
Hi, we are Jesus Gonzalez and Ahide Garcia, parents to Sebastian Gonzalez. Sebastian was born on August 15, 2006 in Visalia, California. He was diagnosed with Full Trisomy 13 the week after his birth. He weighed 6 lbs 7 oz and measured 18”. He has a large VSD and an ASD, Acid Reflux, but healthy otherwise.
 
At the time of his birth we had no idea he would be so different from our other children. Physically, he didn’t appear to be ill, so we were so shocked to be hearing so many horrible things about our baby’s health! We kept asking: “How could one child have so many health issues?” My husband and I were devastated at first. However, as time went by, reality settled and we decided to turn our self pity into something more positive. We wanted to make it all about him, not us. My husband and I began thinking of a plan of care for Sebastian, and decided we needed to research the chromosomal anomaly.

As part of our research, we came across this website and got in touch with some of the parents who gave us some of the best advice to fight for Sebastian. Doctors gave us the worst expectations any parents could hear. However, we found a little bit of hope and were able to make that tiny speck grow into a huge amount that not only was enough for Sebastian, but for all those around us.
 
Sebastian is currently awaiting an evaluation from the group of surgeons at UCSF to see if he will benefit from heart surgery. He will also see a GI to evaluate his problem with acid reflux, a neurologist, geneticist, and possibly have another hearing screen. We will knock on all doors available, and if God decides one of those doors will not open, we will have the peace of mind that we knocked.
 
I often wonder if God makes these children so complicated so that only those who truly look beyond the outer layers, really do get to know and love them.
 
Although we are not experts in Trisomy 13, we are experts in our child, and if we can be of assistance to anyone, please feel free to contact us. E-mail address: ahideg76@yahoo.com
 
Blessings to all
 
Si su hijo ha sido diagnosticado con Trisomía 13 y le gustaría comunicarse con alguien que ha pasado por una experiencia similar, por favor escribanos con toda confianza. Gracias.  Correo electrónico: ahideg76@yahoo.com  Bendiciones para todos.
 
Aide Garcia & Jesus Gonzalez
Sebastian Gonzalez Full T 13