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Trisomy 13 - Patau Snydrome - Photos, Support and Resources

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In Loving Memory of This Treasured
Trisomy 13 Child

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Rylan James Sutherland

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April 28, 2008
31 Hours

  Kansas City, Missouri (MO)  - Full Trisomy 13
 


 

 
 

"The pain of the loss is so small
compared to the joy, pride and mostly love
that I feel for my son."

My son Rylan James Sutherland was born on 4/28/2008. I found in the latter part of my 7th month that he would be born very sick and in all likelihood we would never bring him home.

We did not do amnio and so were not give a definitive diagnosis until after birth.

It is my belief that Rylan was born to be an angel. I was blessed to carry full term and have 31 beautiful hours with him. He is loved and remembered.

The pain of the loss is so small compared to the joy, pride and mostly love that I feel for my son.

We lost Rylan 4/29/2008. His big sister, father and I cherish every moment and still hold him in our hearts. Rylan was diagnosed with a full trisomy 13.

Courtney Sutherland
courtneysutherland86@hotmail.com

 

 

Submitted 2-20-10

 

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All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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