Home SEARCH About This Site Site Visitor Comments Donate Website NEWS & UPDATES Contact Us
Trisomy 13 - Patau Snydrome - Photos, Support and Resources

  Embracing Life - One Moment at a TimeTM

LivingWithTrisomy13.org


Sponsor

In Loving Memory of This Treasured
Trisomy 13 Child

< Memories Page

Paul Wyatt Sexton 

Click here to send an update or photos September 5, 2006
Three hours one minute

  Starkville, Mississippi (MS) - Full Trisomy 13

 


Trisomy 13 ~ A Printable Handout

A Mother's letter to newly diagnosed Families 
 
 

FAMILY UPDATE - NEW SIBLING

3-13-10
Julie, mom to Wyatt, has a Caringbridge site where she journals about little sister Jolene (born 11/28/07) who was diagnosed with bilateral retinoblastoma, a rare eye cancer, and is receiving treatment at St. Jude Children's Research Hospital in Memphis. Please keep Jolene & the Sexton family in your prayers for a complete healing of cancer

"We were singing "Jesus Loves Me" to Paul Wyatt and he opened his beautiful blue eyes and smiled - it is a gift I will always treasure! ....And what an impact he has had on us; teaching us about the value of life and quality of time, and so much more."

 9-15-06

A routine AFP test started the nightmare that turned our world on its end.  The test indicated 1:10 odds of Trisomy 18 and sent us to a maternal-fetal specialist.  We hoped it was one of the false positives you routinely hear about.

At that appointment on April 18, 2006, however, our hopes faded.  But not the love we had for our unborn child.  We were told our son had alobar holoprosencephaly, tetralogy of fallot, a small stomach bubble and a possible cleft lip/palate.  They did an amnio and confirmed Trisomy 13 two weeks later.  Abortion was offered as a "solution".

Our prayers, along with this site with the stories and friends we made here, sustained us for the next five months.  I often felt that we were in a time warp as time seemed to crawl, with too many sleepless nights and emotion-laden days to count.  We braced to prepare our two older children, who were 10 and 6, and the rest of our family and friends for the dreaded news.  The prayers we received in return were truly humbling and continue to sustain us.

Paul Wyatt was born via c-section at 37.5 weeks.  He weighed 6 lbs., 10 oz.  His APGAR scores were 2 and 8.  He lived for three hours and one minute.  We prayed that he would not suffer and that we would have time to know and love him.

We were singing "Jesus Loves Me" to him and he opened his beautiful blue eyes and smiled - it is a gift I will always treasure!  He then slipped right into the waiting arms of heaven.  What an angel! And what an impact he has had on us; teaching us about the value of life and quality of time, and so much more.

Kyle and Julie Sexton
sexton88@bellsouth.net

 

 

 

 

 

 

 

 

 

 submitted: 9-15-06

 

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA  92649

info@LivingWithTrisomy13.org

 

 

All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

Translation
Search Specific Languages or Countries

 

Design & Hosting lovingly provided by::
Apke Web Services