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San Diego, California (CA) - Full Trisomy 13
Becca Bouligny
bbouligny@yahoo.com
Nathan means Gift
David means Beloved
He was our “Beloved Gift” |
Why would a good God
allow these type of things to happen?
As you’ll read in John 9 The Man born Blind. As he
walked along, he saw a man who had been blind from birth. His disciples
asked him, “Rabbi, was it his sin or that of his parents that caused him to
be born blind?” “Neither,” answered Jesus: ”It was no sin, either of this
man or of his parents. Rather, it was to let God‘s works show forth in
him....”
Click here to listen
to Larry's message about his son Nathan
(In Audio) Also ~ The "powerpoint presentation" for the Sermon |
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Hello friends,
Our little Nathan David was born this morning at 3:15 a.m., weighing in at 4
lbs. 11 oz. my husband and I enjoyed him for an hour and 45 minutes and then
he went home to be with our Heavenly Father.
He was sweet and wonderful and breathed all by himself. He struggled a tiny
bit, and eventually just decided he would rather be with the Lord. He went
very peacefully. We are so blessed to have met him and spent the time with
him that God granted us. The Lord is good and answered so
many prayers through our little Nathan.
Becca
mom to angel Nathan David, 2/8/07 - - - - -
11-25-06
Thanks so much to everyone for loving and praying for us and the other
prenatal families. We certainly appreciate it and can feel the Lord moving
in our lives.
An update on Nathan David: We went for an echocardiogram about ten days
ago. It went...as we expected. at this point, no news is really "bad
news"...it is all just plain news! Nathan's heart has a number of issues.
they originally said HLHS, but the cardiologist said it is possible that his
heart is "flopped" (yes, that is the proper medical term - haha!), and that
it is the right side that is underdeveloped. They think they saw the aorta,
but could not find the pulmonary artery. They believe that is because it
isn't there, but aren't sure. so at this point they are calling it
pulmonary artesia and truncus arteriosis. They said we could come back for
another echo if we like. not sure if we will go or not. I tend to try to
gather every ounce of information possible, whereas my husband doesn't
really see the point of going back in, seeing they will do an echo when
Nathan is born.
Right now there appears to be a small artery that is looping around and
pumping to the lungs. If we do have a live birth (hopefully!), the valve
that usually closes in the first few days will pose a huge threat to his
life if it actually closes (sorry, forgot the name...but you all know
it!) . however, we know that we are not dealing with "normal" anatomy...so
it is possible that it won't close. only God knows and He has finally taken
me to the place where I am GLAD to not be in control!
During the echo Nathan's heart rate went way down for extended periods of
time (down to 60 for a number of minutes). The doc said this could be an
indication of a problem, or it could be an exaggerated slowdown that every
baby has. He was nice and vague! We'll see. God is SO good and we know
that Nathan will be with us for the appointed amount of time that He
ordained before the creation of the world. He is gracious to give us the
fulfilling peace that comes in knowing and understanding Him.
We're having turkey dinner tonight...so back to work!
Blessings to all, i am so appreciative of the support we have here.
Becca, wife to Larry, mom to Nathan David (full T13 due 2/21/07) and
furbabies Samson and Delilah
Becca Bouligny
bbouligny@yahoo.com |
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Translation
Ironman
for Kids - The Living with Trisomy 13 Community thanks Michael
Hennessey for helping to raise awareness for Trisomy 13 and other
related disorders. 
to help update the medical literature and to improve the quality and
availability of medical care. Tracking Rare
Incidence Syndromes (TRIS)