Home SEARCH What is Trisomy 13? About This Site Donate
Contact Us

  Embracing Life - One Moment at a TimeTM

LivingWithTrisomy13.org

Ironman for Kids - The Living with Trisomy 13 Community thanks Michael Hennessey for helping to raise awareness for Trisomy 13 and other related disorders. See Video & Details>

In Loving Memory of This Treasured
Trisomy 13 Child

< Memories Page
 

Eliza Bernice Delgado      

September 02, 2006 @ 10:07am  - 4:30pm

  Chicago, Illinois (IL)

Leticia Delgado is available for immediate phone support
708-623-4560    lettydelgado81@yahoo.com

Myspace page   
 

Family Update - New Sibling!

 

Welcoming Eliza’s little brother,

Michael Aaron Delgado
Born on November 14, 2007

- He weighed 6lb and 10oz
And 20 inches long
 


Weighed 4 lbs 07 oz and was 18  inches long

When my husband and I found out that I was pregnant we were so happy,  we couldn't believe it.  I finally got pregnant, it was a miracle.   As time pass by we found out we were having a little girl, we were more happier than ever.  On July 24, 2006 I had my second ultrasound done but I wasn’t told anything was wrong. I had my doctors appointment on July 26, 2006 and my doctor told that everything was fine,  but he didn't like the result from ultrasound.  To be safe he was going to send me for another ultrasound where they were going to check the baby in more detail and he told not to worry.  So I didn't worry a lot, although I knew something was wrong but I was praying to God that everything was going to be fine.

On July 31, 2006 I had my appointment for a level two ultrasound.  I was told my daughter had a heart defect; cleft lip; fluid on her brain; under weight etc.  I was in shock,  I couldn't believe what they told me,   I thought it was a dream. They tried to do an amnio to confirm the Trisomy 13 but it was unsuccessful.  I didn't have sufficient liquid,  it was to dangerous, that was the first attempt.  I left that hospital so sad and depressed.  

I started crying as soon as I left the hospital on my way to the truck.   I called my husband and told him about what the hospital had said to me.  He was shocked and couldn't believe what I was saying.  It was so hard.   I said to myself, I’m finally pregnant with my second baby after seven years, my first baby is a boy and know I’m having a girl.  On August 04, 2006 I had another appointment for the amnio and this time they did get the fluid.  They said by Monday I will get the result if my daughter was  or  is Trisomy 13.  Over the week and weekend the church where we attend was praying for my Daughter Eliza. On Monday night we got the call from my doctor and he had confirmed that yes she was Trisomy 13.   That broke my heart completely.  I was very devastated,  I was crying but at the same time I had to be strong for my son.
  
On September 02, 2006 at only 35 weeks,   I woke up at 1:20 am,  I felt my water break.  I was shocked,  I thought it wasn't my water so I waited a little but I felt more water coming down.   I called the hospital and talked to a doctor and they told me to go to the hospital to get checked.   It was my water and I was going to stay at the hospital,  I was nervous about what is going to happen.  

She was born at 10:07 am.  She was a  beautiful little girl.   When I  held her in my arm,  I started to cry,  So long I had waited to talk to you and now I have you here in my arms, but I have to let you go in peace.   I don't want you to suffer,  you could rest in peace. She was a brave little girl,  she had her own little battle,  she didn't want to let go.   

A lot of our family came to the hospital and saw her alive and saw that she was a very strong baby. When my family and members from our church were holding her,  it was so hard for me to let go,  but I was being so strong inside. When she flew with her wings I was so happy because I at least could thank God for letting me hold her.  I held her in my arms and told her that I loved her and I was even able to  sing her the song that I always sang every night when she was in my tummy.   And I was so happy I could be there to say bye to her.

We had 6 beautiful hours she was alive, with us and in our loving arms.     
  
Thank you for this website it has help me a lot and gave me a lot of support thru these moments so difficult.
  
The Family Delgado
lettydelgado81@yahoo.com
Chicago, IL


 

 
 

 

 

  submitted: 9-12-06

 

Have a child living with Trisomy 13?  We would love to add your child to our Album.
Click here to send us their information. (Please note in the subject area if this is a Trisomy 13 photo as I do not open attachments unless I am aware of the sender.)
 
 


 
 

Click here to download printable LivingWithTrisomy13.org "awareness cards."

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA  92649

info@LivingWithTrisomy13.org

 

 

Text and graphics © LivingWithTrisomy13.org 2005-2007 All information found on this site was submitted to us directly by the families and used on this site with their permission.
Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 

Looking for ALL families who’ve had a trisomy child of any number. Whether you terminated, miscarriage, had a stillbirth, live birth - living or deceased. Including adoptive and Foster parents. Please fill out the TRIS survey  to help update the medical literature and to improve the quality and availability of medical care. Tracking Rare Incidence Syndromes (TRIS)  Click here to add your information

Translation
Search Specific Languages or Countries

 

Design & Hosting lovingly provided by::
Apke Web Services

s