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LivingWithTrisomy13.org

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In Loving Memory of This Treasured
Trisomy 13 Child

< Memories Page

Claudia Isabella De Luna

Delivered: August 4th, 2006  

 

"Claudia Isabella has left beautiful memories in our lives and that I feel so much closer to God after all this happened..."

Corpus Christi, Texas (TX) - Full Trisomy 13

Diaphragmatic hernia,  Claudia Isabella has left beautiful memories in our lives and that I feel so much closer to God after all this happened because I know He was, like it is written in the Bible, "My Prince of Peace, my Refuge, my Shelter, etc." and I know that all of our little babies are together probably saying "If our mommies could only see what we see, they wouldn't hurt so much".  
  
Our Story:  Chris, my husband, and I found out we were expecting our third child on December 8th, 2005, we have a 5 year old girl, Ariela, and a 3 year old boy, Cristobal.  In April I had a sonogram done and the Doctor found an Omphalocele on the baby's belly (tummy), we were sent to a genetic specialist, after having a 4-D sonogram done the specialist told us that our baby had about 8 abnormalities, Diaphragmatic hernia, omphalocele, an abnormal heart, small chin, abnormal hand posture, etc., this was shocking news to us.  

I had to put my trust in God, and kept praying that somehow this was a mistake.  On June 12th I had an amniocentesis done, and of course we hoped that it was going to come back normal, but it didn't, the results came back and for the first time I heard the term "trisomy 13", what a nightmare this was when for the first time all Doctors I spoke to, agreed that this baby didn't have a chance because of all the abnormalities plus T-13, but as a mother I never gave up hope and continued to pray that a miracle would happen.

My due date was August 12th, and on August 3rd. I went in to a regular check up and My baby's heart beat was not found, I went in to delivery the next day on August 4th, 2006, and her burial service was on August 7th., this has been an experience that has left a lot of pain, I can see how anybody can go crazy with something like this; nevertheless, I know that God did answer my prayers and He made a miracle happen, a miracle "according to His will", the biggest miracle of all, eternal life in Glory with Him, I know she is in perfect health and in a perfect place with our Awesome God and His Holy Angels.
  
Claudia Isabella has left beautiful memories in our lives and that I feel so much closer to God after all this happened because I know He was, like it is written in the Bible, "My Prince of Peace, my Refuge, my Shelter, etc." and I know that all of our little babies are together probably saying "If our mommies could only see what we see, they wouldn't hurt so much".   
  
Claudia Isabella’s Mom, Letty  - E-mail:  Lettyguval@yahoo.com
Corpus Christi, Texas


 

“JESUS TELL MY LITTLE GIRL”

Jesus tell my little girl,
That when I found out she existed within me
I rejoiced knowing we would be inseparable for 9 months
Knowing we would share absolutely everything,
specially the songs dedicated to You my God.
Tell my precious little girl that every time I felt her movements
and every time I heard her heart beat
I rejoiced and I would thank You for her existence
Tell her that I cried a lot 4 months ago
when the Doctors told me she was not well
that we might not finish this journey together like I longed for.
Tell her that I asked You over and over to let her stay with me
but that I would accept Your will with all my heart
because You in Your Glory knew what was best for her
Tell my girl that when I went to my last Doctors appointment
and didn’t hear her little heartbeat,
I felt so much pain, my heart also wanted to stop beating,
but You reminded me of Romans 8:28 “And we know that all things work
together for good to those who love God”.
Tell her that when I saw her for the first time
I took her little body in my arms and with all of my heart
I wanted her to open her eyes and look at me!!!!
or for her to cry so mommy could comfort her!
She didn’t cry, but she did open her eyes
but not to look at me, but to see YOU IN YOUR GLORY!
Tell her that when her Daddy and I left the hospital
we held each other and wept
because she was not coming home with us!
but it brought us peace to know she went home with You.
This last thing Lord, tell my precious Claudia Isabella
that her Daddy, her little sister Ariela, her little brother Cristobal and Mommy
love her a lot and already miss her so much,
and that her departure has been very painful for all of us,
but that at the same time we are very happy
to know she is where we long to be,
by Your side Lord, for eternity, where “there will be no more pain or tears”
where one day soon we will reunite
and again, together as a family
we will bow before YOU, praising and worshiping YOUR HOLY NAME!
Thank You LORD for 9 unforgettable months with my baby girl
One more thing,….
Her Daddy asked to please give her a kiss on her forehead for us………Thanks….
CLAUDIA ISABELLA August 4, 2006

 

 submitted: 9-23-06

 

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Text and graphics © LivingWithTrisomy13.org 2005-2007 All information found on this site was submitted to us directly by the families and used on this site with their permission.
Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 

Looking for ALL families who’ve had a trisomy child of any number. Whether you terminated, miscarriage, had a stillbirth, live birth - living or deceased. Including adoptive and Foster parents. Please fill out the TRIS survey  to help update the medical literature and to improve the quality and availability of medical care. Tracking Rare Incidence Syndromes (TRIS)  Click here to add your information

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