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"She was our true
joy. We will always be thankful for the time God allowed us with her and
will continue to seek His will.
God's plans are always perfect and we know that Amaya's life will be used in
a glorious way. We have already seen her make such an impact on so many
people and will be looking forward to the continuation of God's plan as He
reveals it to us." 
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 Aaron & Gina Lynch
(available for immediate support)
503 843 0987 aaron.gina@gmail.com
If anyone wants to talk feel free to call.
Amaya Faith came into this
world on August 12th 2006. She was barely breathing, not crying and not
responding to stimulation from the doctors. My husband and I cried and
prayed and waited, and than there was a faint cry. What a wonderful sound,
one that brought even more tears to our eyes. After two failed intubations Amaya began to breathe on her own and I was able to hold her for just a
brief moment before they rushed her and my husband off to the NICU. As
lonely as that
feeling was I insisted that my husband stay with her, thank God for friends.
I was so thankful to hold her before they took her way, but how empty a
feeling it is to be pregnant, give birth, and than sit in a hospital bed
with nobody but a good friend. You are suppose to be cradling your newborn
close on your chest as your husband looks loving down at both of you. I was
determined to get to the NICU asap and was out of bed within a half an hour.
After my one hour
check I was ok'd to make the wheel chair ride over to see my precious baby
and husband. She weighed 4lbs 5oz and was 17 1/2 inches long. She had had
a difficult hour and they had to try to intubate again, but once again the
attempt failed and she started to breathe on her own again. We were able to
spend a glorious week with our baby girl, holding her, loving her and
treasuring every moment God allowed us to have with her. Through the week
we encountered lots of trying times, there were two nights when Amaya had to
be resuscitated 3 times. The 2nd night on the 3rd time it took chest
compressions to get her to come back. The next night we had to make the
hardest decision of our lives, we decided that if she had another episode
that we were going to just hold her and love her.
We knew that she couldn't be intubated and
having watched them do chest compressions and knowing how hard they were on
her little body, we couldn't put her through any more pain. We also knew
that she was God's child, given to us to care for until He chose to bring
her back to him. We had two and a half more wonderful days with her after
that and were blessed by every minute with her. On Sunday morning at 6:30am
her oxygen alarm started beeping and within minutes her heart rate was
dropping, my heart raced as I held the oxygen right up to her mouth and
rubbed her back as vigorously as I could, we tried repositioning, 100%
oxygen, and lots of stimulation.
My husband and I cried and prayed and tried,
but knew God was saying it was time. We got her out of bed and I held her
as Aaron stroked her cheeks, with the sun shining in our window we rocked
our baby girl in her last half hour with us. We cried and prayed as we
treasured and thought of each moment we had been blessed with. She left our
arms and went to be with Jesus at 7:07am on August 20th 2006. She was our
true joy. We will always be thankful for the time God allowed us with her
and will continue to seek His will.
God's plans are always perfect and we know
that Amaya's life will be used in a glorious way. We have already seen her
make such an impact on so many people and will be looking forward to the
continuation of God's plan as He reveals it to us. The pain of losing a
child, a baby, is indescribable. The hurt is so deep and the pain so
overwhelming that it takes a constant reminder to trust God and His
sovereignty. God does not make mistakes, He creates all life and knows each
one of us inside and out. We are honored that He chose us to be Amaya's
parent's, even if the time seemed to short, it was a wonderful week. God's
strength and comfort will sustain us in this time, as well as the faithful
friends and family He has placed in our lives. I know that every day will
bring new reminders and new tears, but we will forever be thankful for the
life of our little Amaya Faith. Aaron and Gina Lynch
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Ironman
for Kids - The Living with Trisomy 13 Community thanks Michael
Hennessey for helping to raise awareness for Trisomy 13 and other
related disorders. 
to help update the medical literature and to improve the quality and
availability of medical care. Tracking Rare
Incidence Syndromes (TRIS)
Translation