Las Vegas, Nevada (NV) - Trisomy 13 - Full

3-27-07

Austin when home to be with Jesus on March 10th at 2:46 pm
Our story will be coming soon.
Here you can view some precious moments with our beautiful gift from God.

BLR Life Photography has put together a beautiful video montage of our
beloved Austin's brief life.
http://www.blrphoto.com/hampton/

3-5-07
Prenatally our baby was diagnosed with a 2-vessel cord, Hydronephrosis, IUGR, a wide cysterna magna and posterior fossa and multiple ecogenic foci in his heart. The doctors suspected some sort of syndrome, but we opted to not have an amnio. Austin was born at 38 weeks and we found out on day 10 of his life that he had Trisomy 13 - Full.

Austin will be 4 weeks old tomorrow. He is still in the NICU and his condition is complicated by Tracheomalasia, which keeps him on a vent. They keep him pretty sedated as the vent tube is aggravating him - he has dislodged it or pulled it out 4 times now. His airway is constricted and swollen due to the several self-extibations.

Austin also has Hydronephrosis on one of his kidneys at a grade 4 - pretty severe. He is on daily antibiotic for prevention of kidney infection. He is also starting to reflux a little bit after his OG feedings. Austin occasionally has apnea spells as well.

We are being faced with making the worst decision - take him off the vent and let him go or try a trachea and g-tube and see how he does with his malasia. We love him very much and feel so blessed that we have had this much time with him. We are praying heavily for clarity to make a just decision. Austin has 2 healthy big sisters - Alexa (7) and Taylor (4) who are trying hard to understand why their brother is still at the hospital.

We need prayers of peace & clarity.
Sean & Darcy Hampton
hamptons.x3@juno.com  or darcy.hampton@wynnlasvegas.com