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Living with Trisomy 13 - Patau's Syndrome

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 Rayana Nicole Johns

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Born: January , 6, 2006

  Waldorf, Maryland (MD)      
 


Update 5-28-09

Rayana is now 3 1/2 years, she is doing very well. She is using about 10 signs and has a vocabulary of about 45 words.

She is becoming more and more verbal and more social every single day. She is sooo playful and loves to play outside and in the water.

She never stops going!! She still has remained very healthy with ear infections being the only ongoing issue medically that she has had.
Thanks

Shaunna Johns
SNRJOHNS@aol.com

- - -

My name is Shaunna Johns. My daughter's name is Rayana Nicole Johns her date of birth is January , 6, 2006. She was diagnosed with Partial Trisomy 13. We live in Waldorf, Maryland. She was born in Clinton Maryland. 

Overall, Rayana is doing really well. No medical problems or procedures. She is developmentally delayed and is cognitively speaking at about 15 months. She is walking and climbing doing most of what 2 year olds do.

Her biggest struggle is communication. She babbles but no talking. She just learned to sign the word more.

We are so proud of all Rayana has accomplished and would like to give some positive support to other families struggling with these types of challenges.

Shaunna Johns
SNRJOHNS@aol.com



 

 

 

Submitted 12-1-07

 

Have a child living with Trisomy 13??  We would love to add your child to our Album.
Click here to send us their information. (Please note in the subject area if this is a Trisomy 13 photo as I do not open attachments unless I am aware of the sender.)

 

 


 
 

Living with Trisomy 13
Focused on prayerful support and gifts of love to those touched by a Trisomy 13 child.
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All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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