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My
name is Shaunna Johns. My daughter's name is Rayana Nicole Johns her date of
birth is January , 6, 2006. She was diagnosed with Partial Trisomy 13. We
live in Waldorf, Maryland. She was born in Clinton Maryland.
Overall, Rayana is doing really well. No medical problems or procedures. She
is developmentally delayed and is cognitively speaking at about 15 months.
She is walking and climbing doing most of what 2 year olds do.
Her biggest struggle is communication. She babbles but no talking. She just
learned to sign the word more.
We are so proud of all Rayana has
accomplished and would like to give some positive support to other families
struggling with these types of challenges.
Shaunna Johns
SNRJOHNS@aol.com
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Translation
Ironman
for Kids - The Living with Trisomy 13 Community thanks Michael
Hennessey for helping to raise awareness for Trisomy 13 and other
related disorders. 
to help update the medical literature and to improve the quality and
availability of medical care. Tracking Rare
Incidence Syndromes (TRIS)