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Trisomy 13 Child

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Niles Cooper

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January 22, 2010
36 minutes

   St. Louis, Missouri (MO) - Full Trisomy 13, Dandy-Walker Variant, Pulmonary Atresia with Tetrology of the Fallot, and Congenital Diaphragmatic hernia  
 

 

 His Birth Had Worth
The Answer to a Grandmother’s Prayer
And God answered the ‘why?’-  

‘Nile’s short life, time cradled in arms, miraculous birth -Were gifted as a glimpse of his earthly and heav’nly worth!’

Written by his grandmother and dedicated to Niles Lowell Cooper, newborn son of Kimberle and Jason Cooper, who was born and went to heaven on 1/22/2010.  His short life, though challenged by Trisomy 13, was a testimony to a family’s trust in God.  His life was celebrated by many friends and relatives who knew his worth!

A Grandmother's
Prayer
for Our Family

by Marsha

Dear God, who has all power to heal,
As you watch from above and see us kneel,
Please give us the strength and faith to know
That only from you do all blessings flow.

The new life you gave is still growing, a seed,
And we're told has profound frailty, 'specials needs'.
With more than a struggle just to be strong,
this babe will be ours...but for how long?

If it is your will to make Niles whole,
please tenderly heal, make his life full.
Bring joy and peace to a new family.
Holding up their life and faith spiritually.

Our first, early dream, now a hole in our hearts,
is replaced by trying to know the part
his young life plays in this bustling world?
We trust that in heav'n God's plan will unfold!

Surely we'll ask on the day of his birth
just how we'll hold the blessing, the worth
of his life -though maybe it short, sick or troubled.
By mom, dad and bro the lifegift nev'r doubted!

Today, tiny babes so oft taken for granted.
Why this one, God? -so loved and wanted!
Provide the comfort only you can bring
While answering the 'whys', among other things.

And please help us know the heavenly reason
He may not reach man's full earthly season.
While drawing us towards your outstretched hand,
Give us a glimpse of your all-knowing plan.

Remembering to say thanks for all life you bring,
we petition now for your celestial blessing.
Please make Niles whole -feisty and well,
only, we ask, if it is your will.

If not, give us hope and strength to bring
your word to others about the 'sting'
¬So they may know that their earthly life
though sin-birthed is conquered through Christ, the Sublime!

**Dedicated to Niles Lowell Cooper, in utero, son of Kimberle and Jason Cooper. Written by a grandmother as a prayer for a grandson and his loving family coping with a Trisomy 13 pregnancy.

trisomy133-24-10

Niles was born on 1/22/10 weighing 5 pounds, 9 ounces.  He was a beautiful baby boy who lived for 36 minutes in the arms of his family who loved him dearly. 

Niles passed away peacefully in the arms of his daddy.  Niles' birth was a true gift, a miracle that touched our lives and hundreds around us.  Jason and I miss him deeply but take comfort in knowing he is with Jesus and that we will be reunited with him one day. 

We would not have changed any of the decisions we made for Niles' along the way.  We are proud to have honored God by loving our child with our whole hearts.  God is good, and will continue to give us strength...He reminds us each day how precious life is and how awesome He is.  

Here is a black and white picture of me and Niles.  

 Kimberle  

 

Niles is due to be delivered on 2/6/10 in

We were told Niles was a Full Trisomy 13 during our 20-week ultra sound. He also has Dandy Walker Variant; Tetrology of the Fallot.

We've gone from devastation and depression to acceptance and relying on God for strength and showing us the way.


Thank you!
Kimberle
walkin37@yahoo.com

Jason and Kimberle Cooper
 

 

 



 

Submitted 10-3-09

 

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All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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