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Niles Cooper |
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due: February 6, 2010 |
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St. Louis, Missouri
(MO) - Full Trisomy 13, Dandy-Walker Variant, Pulmonary Atresia with
Tetrology of the Fallot, and Congenital Diaphragmatic hernia |
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A
Grandmother's
Prayer
for Our Familyby Marsha |
Dear God, who has all power to heal,
As you watch from above and see us kneel,
Please give us the strength and faith to know
That only from you do all blessings flow.
The new life you gave is still growing, a seed,
And we're told has profound frailty, 'specials needs'.
With more than a struggle just to be strong,
this babe will be ours...but for how long?
If it is your will to make Niles whole,
please tenderly heal, make his life full.
Bring joy and peace to a new family.
Holding up their life and faith spiritually.
Our first, early dream, now a hole in our hearts,
is replaced by trying to know the part
his young life plays in this bustling world?
We trust that in heav'n God's plan will unfold!
Surely we'll ask on the day of his birth
just how we'll hold the blessing, the worth
of his life -though maybe it short, sick or troubled.
By mom, dad and bro the lifegift nev'r doubted!
Today, tiny babes so oft taken for granted.
Why this one, God? -so loved and wanted!
Provide the comfort only you can bring
While answering the 'whys', among other things.
And please help us know the heavenly reason
He may not reach man's full earthly season.
While drawing us towards your outstretched hand,
Give us a glimpse of your all-knowing plan.
Remembering to say thanks for all life you bring,
we petition now for your celestial blessing.
Please make Niles whole -feisty and well,
only, we ask, if it is your will.
If not, give us hope and strength to bring
your word to others about the 'sting'
¬So they may know that their earthly life
though sin-birthed is conquered through Christ, the Sublime!
**Dedicated to Niles Lowell Cooper, in utero, son of
Kimberle and Jason Cooper. Written by a grandmother as a
prayer for a grandson and his loving family coping with a
Trisomy 13 pregnancy. |
 Niles is due to be delivered on 2/6/10 in
We were told Niles was a Full Trisomy 13 during our 20-week ultra
sound. He also has Dandy Walker Variant; Tetrology of the Fallot.
We've gone from devastation and depression to acceptance and
relying on God for strength and showing us the way.
Thank you!
Kimberle
walkin37@yahoo.com
Jason and Kimberle Cooper
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Submitted 10-3-09 |
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Living with Trisomy 13
Focused on prayerful support and gifts of love
to those touched by a Trisomy 13 child.
Inspired By An Angel
Attn: LivingWithTrisomy13
15802 Springdale St.. #68
Huntington Beach, CA 92649
info@LivingWithTrisomy13.org
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All text and graphics ©
LivingWithTrisomy13.org 2005-2010 - all rights reserved
All information found on this site was submitted to
us directly by the families
and used on this site with their permission. |
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Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela
Sullivan 2004, used with permission. |
If We Hold On Together Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.
Used with permission.
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*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy
13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional
familiar with your specific condition. The personal journeys of any parents on
this site are only their opinions and their own journey with having a Trisomy 13
child. You should consult with your own physician or other medical professional
regarding the opinions or recommendations expressed within these pages as to
your own child's symptoms and medical condition. |
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