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Jonathan Spaugh

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August 21, 2009

  Clemmons, North Carolina (NC) - Trisomy 13    
 

Photos by Deborah Hendrix a volunteer with Now I Lay Me Down To Sleep
 

So much of the stress and worry was gone
and in its place, a deep satisfaction that I can say
 that I was able to hold my baby Jonathan all of his life.
He was precious. His name means "given by God"
and he certainly was.

8-25-09

On Friday, August 21, at 9:32 a.m., we welcomed Jonathan Mark Spaugh into our family. At 10:34 a.m., Jesus welcomed our Jonathan into Heaven. He was a tiny, precious, peaceful gift, weighing 2 lbs., 11.8 oz., and measuring 16 3/4 inches.

For that hour, I felt that I got to do something that not many get to in this life. I got to hold onto a piece of eternity -- a glimpse of what awaits me in Heaven. I had asked another mom who has loved and lost her baby to Trisomy 13 when you ever find peace in dealing with this while I was still expecting. When I shared the news with her of Jonathan's arrival and how peaceful he was, she suggested that that may be the answer to my earlier question.

We were blessed in many ways that day. Aside from the fact that my husband was terribly sick (diagnosed with pneumonia only the day before and running high fever), God answered so many prayers for us that day. I struggled while I was pregnant with fears about the "what ifs" and whether we would make the best decisions for our baby.

Going into labor two months earlier than expected without any warning stopped the dread of the approaching due date. Then, Jonathan was here and not struggling or suffering and it was in that that I found my peace. He never opened his little eyes -- just slept in my arms. It's as if he just wasn't even meant to see this world; he was destined for a far better place. 

On the way to the hospital, I told my husband that I hoped that the doctor who had performed our amnio and told us of the results was the one on call because he had been so very compassionate in dealing with us. When we got there, we found out that he was the doctor at the hospital -- another answer to prayer.

All of the nurses attending to us and to Jonathan were divinely appointed to be in that room with us as well. There could not have been a more kind and compassionate, sensitive group of ladies caring for us that day.

So much of the stress and worry was gone and in its place, a deep satisfaction that I can say that I was able to hold my baby Jonathan all of his life. He was precious. His name means "given by God" and he certainly was.

I grieve the loss of him. the time I was able to hold him was too brief. But I know he is in Heaven, he has a perfectly healthy little body and will never feel pain, sickness, or sadness. And he will always be my son. I cannot wait to meet him again and share eternity with him. I never heard him cry on this earth, but I know one day I will have the joy of hearing him laugh!

Kelli Spaugh
spaughs5@triad.rr.com

 


7-26-09

My name is Kelli Spaugh. I live in Clemmons, NC, with my husband, Chris, and our three sons, Zachary (8), Austin (5), and Nolan (2). We found out in February that we were unexpectedly expecting again.

We embraced the thought that God had chosen to add another miracle to our family. In April, I went in for an ultrasound that revealed that our baby had a cystic hygroma, which the doctor explained meant that the baby had a 50% chance of having chromosomal abnormality.

In May, the next ultrasound revealed "indicators" for Trisomy 13. We chose to undergo amnio on July 1 and the results confirmed that the baby has Trisomy 13. We are still coping with this news and what lies ahead.

We know that all children are gifts from God. We are struggling to find peace and trust His plan in this.

My due date is October 22. We found out through the amnio results that we are expecting another little boy, whom we will name Jonathan.

Kelli Spaugh
spaughs5@triad.rr.com
 


 

 

Submitted 7-26-09

 

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Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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