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Trisomy 13 - Patau Snydrome - Photos, Support and Resources

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Living with Trisomy 13 - Patau's Syndrome

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Hannah West

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Born: July 10, 2002

  Evansville, Indianna (IN) - Trisomy 13 Mosaic
 
   
 


8~11~08
I wanted to post some new Pictures of Hannah! She is at her desk the first day of school Hannah and brother Joseph In the car, Hannah with her aunt April and cousin Jayda They are best friends! The one where she is in the Butterfly chair was from Jan. of this year. She has a great Summer, And she is medically doing great NO major problems at all we only have had to deal with the occasional cold. We THANK THE GOOD LORD ABOVE everyday for all of Our Family's Blessings!

 

7-16-08

Hello, My daughter Hannah West was born July 10,2002. she was born with Mosaic Trisomy 13, and due to this she also has Spinabifida.

We live in Evansville, IN She just turned 6yrs. old and is starting the 1st grade this year in an adaptive class room setting, she loves school and is so excited to be going back this fall.

Hannah is very outgoing and eager to learn and try new things! She has some developmental delays, but she catches up fast, she uses a wheelchair and a walker (when we can get her to use them) she is very independent and insists on doing alot of things on her own without devices to help her.

DETERMINED is how I would introduce her to you! I am excited that I found this site to participate in I'm not very in tune with the sites and opportunities there are out there for us to use!

Thank You,

Melissa mooseywoosey9@yahoo.com

 
 

 

Submitted 7-16-08

 

Have a child living with Trisomy 13?  We would love to add your child to our Album.
Click here to send us their information. (Please note in the subject area if this is a Trisomy 13 photo as I do not open attachments unless I am aware of the sender.)
 
 


 
 

Living with Trisomy 13
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All text and graphics © LivingWithTrisomy13.org 2005-2010 - all rights reserved
Use prohibited without permission
All information found on this site was submitted to us directly by the families
and used on this site with their permission.

Cover photo of Pamela Sullivan & her precious daughter Maria, copyright Pamela Sullivan 2004, used with permission.
If We Hold On Together  Song Copyright 2002 by Patricia Welch, Ltd. All rights reserved.   Used with permission.
 
*Disclaimer
All material on this site reflects our personal journey with raising a Trisomy 13 (Patau Syndrome) - child. It is not meant to replace any medical advise of a professional familiar with your specific condition. The personal journeys of any parents on this site are only their opinions and their own journey with having a Trisomy 13 child. You should consult with your own physician or other medical professional regarding the opinions or recommendations expressed within these pages as to your own child's symptoms and medical condition.
 
 

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