Trisomy 13 Syndrome


Note: This website was previously about families who have children that are living with Trisomy 13 Syndrome, also known as Patau Syndrome. It involved information such as what it is, and their amazing stories of how they live and growing in love in the challenges of raising a Trisomy 13 child!

Below you will find out a bunch of information on the definition, what causes it, facts about it, symptoms, and much more…


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What is Trisomy 13 Syndrome?

Trisomy 13 syndrome (also called Patau syndrome) is a genetic disorder in which a person has three copies of genetic material from chromosome 13, instead of the usual two copies. The ‘extra material‘ may be attached to another chromosome, but this is rare.

Sad to say, that due to the presence of several life-threatening medical problems, many infants with Trisomy 13 can die within their first days or weeks of life. Only 5% to 10% of children with this condition live past their first year.